Neuropathy Taxol

That's interesting - I asked my nurse about ice on hands and feet, but she didn't think it would help at all, so I left it. 

Do you have any links to articles about it?

Thanks for your reply.

I honestly didn't look for them. I can tell you that the first time I had paclitaxel my ice packs thawed because I only had one, I had a reaction the chemo so it was stopped for 45 mins. My neuropathy came on the next day - I couldnt dress, tie shoes laces, open cupboards, cut veg, or do anything that applied pressure to my finger tips. My nails were also really tender. I sorted out my extra ice packs and cool bag for the next time and it never happened again. I did have a slow progression of numbness down my fingers and eventually in to my palm, but never again painful neuropathy. Lots of people had recommended it to me, which is why I gave it a go. I already had neuropathy, so I didn't want that to get much worse when I already can't feel my finger tips and drop things alot. My neuropathy is now almost back to pre chemo levels (about 6 months post chemo) and very manageable. I imagine there are research articles about it. Its a personal choice as to whether to try it or not as we have to buy the ice gloves and socks ourselves if we want to try it out. I hope your neuropathy settles.x

Hi zephyr

Thank you so much for your advice. I am definitely going to do that. 

How about these products? Are they the right sort of thing? 

https://www.amazon.co.uk/gp/product/B07XSH9PMX/

https://www.amazon.co.uk/Halo-Mask-Chemotherapy-Neuropathy-Arthritis/dp/B09TQ6PNFX/

Thanks again

I have ordered some socks and hand mittens from Amazon and will take ice blocks with me. 

Thank you so much zephyr. I really appreciate your help and advice.  

Those are very similar to the ones I had. For the gloves I bought spare rectangular packs - I measured up and figured I could fit one of those in each side of the mitt. In the mitts, it helps to tuck your thumb under your palm or it doesn't get quite so much of the cold sitting on the outside edge. For the socks I had to buy the bespoke extra gel packs. I really hope it helps you and halts the neuropathy in its tracks xx

I’ve bought these too. I start paclitaxel soon but I had a course of docetaxel two years a om so I already have some euro patchy from that. I read some positive trials from Japan that showed it reduced some side effects from 60 percent to 20 percent of patients in a study of forty cases. Not huge numbers but there are few disadvantages of trying it.

Thanks for your help

Neuropathy not euro patchy!

I actually think that is nicer, euro patchy, has a sort of continental ring to it.

Hi all.  I just wanted to update you all.  Saw my oncologist today and there is no way he is taking the risk with my neuropathy as he mentioned it can get permanent and life changing.   From tomorrow and my 7th weekly Taxol out of 12 there will be reduction in dosage by 20%.   There was no ifs and buts about this.

Thank you all for warning me about the serious effects of neuropathy as I would not have known other wise.

Oh that is a positive outcome. Glad you have a good oncologist!

Evajean x