Mastectomy - but 5 months since initial lumpectomy with SLN

Hi i was similiar 3 attempts but margins were not clear so ended up having mastectomy on the 7th April. This showrd dvis in the breast so was the right decision. My understanding is that dcis is none invassive and is very early stages of cancerous /abnormal cells so unlikey to of spread to lymph nodes during the time frame. I think it always seems positive if it hasn't shown sign of spreading.

I also had chemo due to high oncotype result and just finisged radiotherapy. Been taking tamoxifen for about 3 months no real issues.....except im boiling hot!!! 

Good luck  xxx

Thank you, and sorry to read you’re so hot! I’m in bed with a water bottle filled with very cold water which helps. Glad you have no real issues too.a relief to hear. 

it’s confusing when everyone has such different results and treatment plans. My varying cancers are stage 1 and grade 1&2 .some ER 8/8 and the latest was PR 8/8. Plus 3 areas of DCIS. I seem to have a mixed bag. 

I know I’m having a mastectomy but don’t want any more surprises with lymph nodes especially with no chemo / radio 

just a bit confused 

I’ve not heard of an oncotype test and it’s not been discussed at my appointments. Is that something commonly used? 

Its a test they do to determine if chemo would be beneficial. My score was 49, i cant remember the exact markers they use but that was considered high enough to recommend chemo, along with my age, cancer type etc. I found the plan changed a lot......initially was told lumpectomy and radiotherapy, 4 operations, 6 chemo and 15 radiotherapy later!! Type oncotype in here and it will explain better than me!! 

It was discussed with me after my first op as i had to give consent. Xx

Thanks - I had a Google too. This hasn’t been mentioned at all. Like you, I started off with lumpectomy/radiotherapy but it’s all gone pear shaped. Mastectomy but nothing further. I do remember my BCN saying there wouldn’t be any further treatment (other than tamoxifen)but didn’t say how that decision had been reached. I think  I’ll have to have a chat with her. 

thank you for getting back to me. Much appreciated

Yeah i would ask. Im 15 months in now and initially i went along with everything a bit blindly, we assume they no what they ae doing but tbat shouldnt stop us asking questions. Once i got a bit more comfortable with my diagnosis i found i was more able to ask questions. I have my mamagram on friday but only because i have rung and asked several times....  initially told i would have them yearly so expected it 12 months from diagnosis but got different answers from each department. Good luck xxx

ive just been reading about these tests,i had breast removed 14th februarythen got infection and was admitted to hospital for 5 days,its a week now since wound fully healed,ime due to start chemo next week and i am having second thoughts the cancer had not spread to the lymph nodes.any advise from anyone would be appreciated,its the first time i have been on here.

I guess I’ll have to go back to the BC nurses and ask how the decision has been reached. *poppy* maybe you should do similar … sometimes there’s information that doesn’t filter down as there’s just so much to take in. It’s only when I get home and think about things, or get a hospital letter with conflicting info, that my brain kicks in with questions.