Hello. I hope everyone is doing ok today, as ok as you can be anyway being in this club.
I am nervous tonight and frightened. I know I have breast cancer, that was confirmed 4 weeks ago, and that I will have chemo first to shrink the tumor before a mastectomy. I had a second biopsy last week, a CT and a bone scintigraphy. Tomorrow is my first appointment to discuss everything fully and agree a treatment plan. I just want to know, all these extra tests are normal, yes? They are just a precaution, nothing special to worry about?
This last week has been the hardest so far, I am ready to begin whatever treatment and just get started. One more night to get through before hopefully finding out everything. I guess I’m just looking for some reassurance that my nerves are normal and the extra tests are probably jothing extra to worry about.
Thank you for listening. Xx
Hi Seren, sorry to hear that you’ve had to join us here, but welcome anyway! I think all the tests vary from one health trust to another, so there isn’t really any “normal”. Although it seems like your health team are covering all bases! Of course you’re worried and anxious about all of it, you’ve probably been living in a haze recently, we’ve all been there! However, the best bit (there is a best bit) is when you get to know your treatment plan; the waiting is truly horrendous. Your team will explain everything and you will then realise that there is every reason to hope for the best and then you can just get on with getting this whole thing sorted, and you will, try not to overthink everything (easier said than done, I know). I was where you are now 8 months ago, worried sick to the point where I couldn’t live my life because I was so anxious. But one step at a time you can get through this and you will, as so many of us have. I had a mastectomy, chemo, radiotherapy and now on hormone tablets! But I’ve done it, the treatment is a pain in the backside, but not as hard as you may think at the moment. Wishing you luck and strength! You’ll get there xxxxx
Thank you so much. Just hearing from someone who has been there and is coming through it is a huge comfort and relief. I am certain that I will begin to relax a bit more when plans are put in place and we begin treatment, it is the not knowing that is the worst part. This past week has indeed been a haze. Every day has felt like a week but, now the week is over I wonder where the time went. Thank you again for replying. It means so much. Hoping you continue to stay well. Xxx
As Mazz says - we all have different tests depending on our situation. So don’t t fret - easy to say I know.
I had chemo, followed by mastectomy - just got to have radiotherapy now to finish off.
look after yourself x
Thank you. It seems I am following your path. I found out today that it hasn’t spread it’s just growing fast. Chemo, surgery and then radio and hormone therapy. They are testing the brca2 gene but that’s for further down the road.
Take care and I hope your radio goes well. Xx
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