Secondary Cancer

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Awaiting treatment plan as its spread to my spine now

  • Is that because of the treatment? I’d hate to lose my independence of driving. Last time I managed to drive once a week to keep my car running. Even if it was to take my mum to the shop.

    Ive taken out most of the tv subscriptions to watch films etc but I get fed up. I sit in the garden or if I’m feeling up to it go for a short stroll down the seafront. I already had long term covid before my first diagnosis and now it’s turned to chronic fatigue which I fight through everyday. 

    we can do this Muscle tone1

    xxx

  • I have to wear a brace to support my neck and spine as the cancer has spread to 2 of my vertebrae . I don't need surgery or chemo but they haven't ruled out radiotherapy yet , I hate not driving . I bought myself a brand new BMW last October and now I'm wondering do I send it back or bare with it , they have said I should be able to drive again but will probably be in a few months if they see changes xx

  • Hi 

    yes long time. I only come in when something is happening with me, which isn’t as often these days. Party boy Larry 2 is pants. Your team will help you ground  him and his pals.  I just finished finished trastuzumab, mine was HER 2 positive, so only now reaching the end of treatment and trying to move on.

    I’ve developed a painful lumpy boob with orange peel skin recently which I’m told is a late side effect of radiation. I had RT last September so it’s late indeed. It can be treated with physio so I’m embarked on that journey now. It’s such a marathon isn’t it?

    Hope you get some time with family to adjust and regroup. Do you have a date for discussing your treatment plan with your oncologist?  I don’t have kids but I have 3 nephews I adore. Would love a niece but no luck so far! They are worth the weary fight against this thing. Stay positive, Let us know how you get on. Love from the coffee fiend xx

  • I will indeed take care xx

  • Don’t give up on your lovely car yet. If they say you will be able to drive then I trust what they say. 
    Im thinking of swapping mine in for a soft top at some point but just want to see what happens with the treatment. Always wanted a soft top and as I’m not going to have a family myself then why Shrug tone1‍ not! Lol 

    xxx

  • So unfortunately cause of my cancer type I can only have paclitaxle at this point. New drugs coming in next year so I will stay positive and live in hope. 
    I started yesterday. Picc line in. Can’t swim Tired face
    Had a bad night cos of IBS and steroids they gave me. But I feel ok at the mo.

    Hope everyone is having a good start to the day xxx

  • I've just had a phone call from my consultant,  she asked if I had anymore pain than usual in my neck and back as there has been a significant change and the cancer as slightly worsened not what I wanted to hear .  Xxx

  • Flipping eck. I want to hug you. 
    Dont give up. It’s a stumbling block and you just need to get back up on the horse and ride hard. They have to tell you that unfortunately. I think I’m looking at a shorter life span than I thought but I’m not giving up. I’ll ignore what they tell me and push through. 
    Message me anytime you want to chat xxxx

  • I really wasn't expecting that after I felt so well after starting treatment , she did say I could be because of a delay in my treatment and if I develop any new symptoms to contact the helpline xxx