Up at the crack of sparrows fart again...

Morning Fig1972  not up as early as you but sleep pattern has been really changed normally awake by 6 which was my get up time anyway but find by 6pm I just want to sleep then it's 1 maybe 2 hours sleep followed by another hour awake but with no energy to do anything but just feel blu and so it the continues I think there is just so much going on the drugs how your body reacts along with that worry /scaredness we try to keep hidden most of the time that our minds just can't settle properly I have started to keep a diary of sorts and have found it really helpful as I have been able to put exactly what I'm feeling down without worrying anyone else is going to see it and it seems to give me a little more rest than I was getting hope this helps sorry your having such a rotten time and hope you get to see your mum son sending hugs xxxD 

Hi sounds like I was when having chemo . I have never been so tired and couldn't sleep. It was the steroids with me don't know if you may be the same? So sorry you and your mum too are going through this it must be so hard for you both. Hope you get to see her soon. 

Maybe ask for some different steroids if it is those keeping you awake. Keep fighting on. I have 5 more RT sessions to get through then hormone tablets but somehow we keep going.  Jane x