Please can somebody help?

FormerMember
FormerMember
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I don’t know what to do. I have my first diagnostic appointment on 11 April and feel so alone and scared. 

I have aspergers which makes talking about feelings really hard and I am struggling with what is ahead of me. I just feel so alone. 

find myself just bursting into tears with the unknown - and I never really cry… 

what can I do?

  • FormerMember
    FormerMember

    I'm so sorry you're feeling this way, Jah.  Being told you've got cancer is overwhelming and terrifying.  I was told I had breast cancer on 10th March and what type on 24th March, so I am also very new to this whole experience and also find myself becoming tearful at random moments.  I seem to remember being told that counselling is available if you feel you need it - perhaps a counsellor could help you with coping tools while you go through your treatment and afterwards?  Do you feel able to talk to your BCN?  They must have experience of helping people deal with the maelstrom of emotions going through cancer treatment creates, regardless of whether they have problems articulating their feelings or not.  Sending you hugs, and know you're not alone; none of us are as we all have each other x

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you Clumsy Patch

    I think counselling will help so will go for that if offered. Is BCN a Breast Cancer Nurse?

    Am so sad you, me and millions more have to experience this… it is proper s*it! 

    what midset do you feel works best to get through the days?

  • FormerMember
    FormerMember in reply to FormerMember

    *Peach

  • FormerMember
    FormerMember

    A BCN is a Breast Care Nurse.  As for what mindset works best to get you through the days, I'm finding that what's working best for me at the moment is ignoring it as much as possible!!  I'm lucky enough to be able to work from home, so I am still busy and things are still relatively normal for me, so I try to focus on that and not allow my thoughts to spiral or get fixated on "I've got cancer".  I'm still doing my normal activities, I'm just being sensible about mask-wearing and sanitiser-using so that I don't catch Covid, and I'm limiting my contact with other people as much as I can for the same reason, but other than that I am very much trying to carry on as normal for as long as I can.  I'm still doing the things I enjoy, like gardening, reading, and walking the dog.  Luckily I'm a homebody so having to stay at home more doesn't bother me.  Does any of that help? x

  • FormerMember
    FormerMember in reply to FormerMember

    Yes it does help. Thank you. 
    I also like being at home and I will try to keep myself busy and not let the dark thoughts dominate. 
    thank you so much. You have really helped me today Hugging

  • Hi  keeping your self distracted is best use this forum for questions and support . I know it will possibly be hard not to let your Asperger’s fixate but please  don’t Google or research online often it’s just horror stories .
    The info on macmillan and breast cancer is very informative and matter of fact .

    Would it help you to write down your feelings rather than trying to verbalise them so your team can learn about how you are feeling . Also write down questions as they come to you so they can read them if you don’t feel at ease asking . 
    Your team will want you to be comfortable with what they plan so won’t mind .

    Is there someone who can go with you to take notes ? 

    Just remember you are not alone everyone on here will support you have a browse thru the threads there are some interesting ones and you can check out peoples profiles by clicking on names some great success stories 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember in reply to Northerner

    Thank you Margaret

    that really does help me - and have already read lots online but only from NHS and Mayo. I don’t engage in social media as find it too toxic. 

    I have been doing things on my own since 14 through bad parenting and have managed, but this has stirred deep emotions I am struggling to understand or deal with. 

    I will write things down and take it all with me - good idea. 

    Thank you so much Hugging

  • FormerMember
    FormerMember

    Hi there. I was diagnosed on the 16th of March last year and had surgery, 6 rounds of chemo and then radiotherapy. Now taking anastrozole for next 10 years. For me once the diagnosis was made things moved very quickly with not much time to think about things. I healed really well from the op (vitamin e oil on the scars as soon as they've healed) and found the worst side effect of chemo severe muscle fatigue and a revolting taste in my mouth. Unfortunately it also killed the nerves in my fingers and toes and I am still living with that nearly a year on. Radiotherapy didn't really affect me til a few weeks later when I developed a very tender boob and that too has remained the same. I have dealt with all this completely on my own and have really surprised myself. When I heard the word "cancer" my first thought was "I can't deal with this"  but I could, I had to. You will be the same. You are stronger than you think. Just take one day at a time and try not to think ahead too much. You can't control what the treatment may or may not do to you. Everyone is different as I'm sure you know so don't waste your energy worrying about things that may never happen. I know this is easier said than done but be positive. You will get through this and come out the other end stronger. If I can do it, so can you! Hope this helps, wishing you well, sending hugs, Mog

  • Hi how are you doing? I hope your appointment went as well as it could and that you have a plan you can focus on, I found when I had a treatment plan that helped me. The other thing that helped me a lot was to just focus on the things I can control - what I eat, doing exercise, and trying to keep busy so not to think about the things I can't control. It's a really horrid time, I hope you are doing ok x

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