Step by step - just diagnosed

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Thank god for the NHS routine mammograms! I've just been diagnosed with Grade 2 IDC - ER+.  Stage inc HER2 to follow.  Everything moving so fast and brain in whirl. Only two  weeks since diagnosis, and now  surgery and sentinal lymph nodes biopsy in 10 days,  then prob radiotherapy and tamoxifen for 5 yrs,  At the moment , drs saying no chemo will be required and v unlikely to have spread as opposite side of breast to lymph nodes as caught so early.  Just can't stop my brain whirring with "what ifs", though surgeons and BCNs being incredibly supportive and reassuring.

  • FormerMember
    FormerMember

    I am in the same boat. This brain whirring is driving me mad especially at 3am. 

  • Hi CTopaz

    Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer. It’s good that it has been caught early.

    Wishing you the best of luck with your operation and biopsy and with whatever treatment you receive.

    Best wishes

    Daisy53

    Community Champion Badge

  • Thanks, . Appreciated.  Will let you know how it goes.

  • Hi. I know exactly how you feel. I was diagnosed in November. Had lumpectomy in December and sentinel node biopsy. Luckily clear margins and clear lymph nodes. Finished radiotherapy 2 weeks ago and 5 weeks into taking tamoxifen. Its a roller coaster and i found from diagnosis to now I've not really taken it all in. Lots of sleepless nights and worrying. I'm really lucky it was caught early but the 'what ifs' are still there. Hoping to see my breast cancer nurse very soon to ask all the questions going through my mind and seeing oncologist again next month. Its worrying times and it's human nature to panic. You'll have good days and bad days but hopefully we'll all be in a position where the good days outweigh the bad. Good luck with your treatment. Let us know how you get on. 

  • Thanks - and I hope you oncologist and BCN can answer your questions and put your mind at rest.  Here's to the Good days!

  • I’m in the same situation. Diagnosed on the 24th March with what I think is the same cancer as yours and now just waiting for dates…just hoping it’s soon as I want it over and done with. The odd thing is I’m not upset, not fearful only rather cross and exasperated with the damn thing. How soon after diagnosis did you get the appointment for surgery and do you have any other appointments booked prior to that?

  • For me it was all very quick. Mammogram, ultrasound and biopsy on 25/11, saw surgeon the week after and op on 23/12. Lots of appointments before surgery with surgeon and breast care nurse then oncologist after surgery which will be ongoing. For me it all felt very joined up, and regularly seeing medical professionals whilst on your journey. You will be taken care of and they will get you in for surgery as quickly as they can i would imagine

  • Thank you so much for the info!

  • I'm like you - more frustrated than upset  everyone is saying, "Oh you must be positive and rest and be good to yourself and are you alright?"  I feel like saying, "Yeah, I'm fine, no different to the day before I was diagnosed!".  My drs and nurses and the NHS trust are being brilliant. Diagnosed on 14 March, saw the consultant on 23 March and had pre-assessment the same day.  Surgery is in 10 days.  I asked why so quick, (glad it is though!) and they smiled and reassured me "Nothing sinister, we just like to get you dealt with asap so you can get on with your normal lives" - I hope you have same quick experience! I have to go for Covid PCR 3 days before and have the dye injection the day before. Then localisation and the surgery on the next day 

    So from that angle all ok - but then other times, I just think about all the " what-ifs" and other times, "Oh well, it is what it is, so just get on with it" :-)

    • Sorry to hear your diagnosis. Sounds like mine diagnosed 12th Jan and had op 8th Feb 1 lump turned out to be 3...47mm 20mm 13mm 1 lymph node removed and clear as were the margins.  Been told Herceptin negative put oestrogen positive so looking like radiotherapy and tablets no idea yet which one seeing  oncologist on Wednesday so hopefully treatment plan.  Also asked if i wanted to have Oncotype test which I have said yes to the more info I have the better. Your brain will be buzzing mine was with what ifs. So to try and stop it a bit I decided not to worry about what I don't know as why worry about something that may not happen. I'm focusing on no more ops radiotherapy and tablets as the treatment and seeing positive side that it was found early and docs were positive and right so far.  Hope all goes ok for you with op and treatment... STAY POSITIVE... All the best..