Elective mastectomy and reconstruction after dcis

FormerMember
FormerMember
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I was diagnosed and treated for DCIS over 2021/22. It all happened very quickly and it’s only now I am realising the enormity of it. I suffer from anxiety and I am now looking at elective mammogram and reconstruction rather than risk a recurrence. I know it’s not an absolute guarantee that there won’t be a recurrence but the risk is very low and it will give me immense peace of mind. Has anyone else gone down this route ? 

  • Hi MrsJ.  Do you mean you are considering an elective mastectomy?  Is this on a breast that was previously treated for DCIS?  I had a left side mx due to DCIS a few weeks ago and wondered if I should have an elective mx on the right side.  I found this post from Liz O'Riordan useful and I am no longer wondering about this for now twitter.com/.../1498418745873739788

  • I’m really sorry you’re feeling so anxious, it’s horrible place to be. My first question is has this option been offered to you? Because I wasn’t allowed a double mastectomy electively as it was deemed unnecessary surgery. I had a single with reconstruction. Rules differ depending on the trust but if you don’t know this is definitely an option then it’s not worth you tying yourself in knots over. Also, your DCIS may never come back, fingers crossed xxx

  • FormerMember
    FormerMember in reply to Anna12345

    I had WLE and radiotherapy, I asked for mastectomy the day after diagnosis but it was never mentioned afterwards. It’s the treated breast I want removing for peace of mind,  I’ve been told surgeon will consider it after counselling, 

  • It is such a hard one.  I feel for you.  At least with counselling you will hopefully feel confident with whatever decision you make in the end.  That is a good plan.  I was on the margin and opted for a mastectomy. I still think I made the right decision but I think I would have benefitted with talking it through with a counsellor too to get it straighter in my head.  It would have helped a lot.  We aren't given much time to get our head round anything are we?  I'm sorry you didn't get the chance to discuss what felt best at the time.  i hope you get some peace soon xx