Feeling so low not sure why

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I have completed my first round of chemo, two operations, radiotherapy and currently on Kadcyla. I was doing remarkably well considering issues i have had along the way but for the last couple of weeks i have become exhausted and tearful which isn’t me. I am wondering/ hoping it is due to the tamoxifen. Anyone else feeling this way? Sorry for the moan.

  • I am only at the beginning of my journey, surgery was only five weeks ago, so I can’t answer about medication effect on you personally, but I have been advised that I will be put on it eventually down the line, and I looked up the side affects and depression can potentially be one. 

    I know you say you have been doing well & that is fantastic to hear xx but the feeling low does also get us all eventually as well, it goes hand in hand with the feelings of gratitude when treatment is working and friends family are giving you support.  So whilst is may also be the medication- remember to be kind to yourself, give yourself time to breathe & moan away - you’re allowed xx especially here

    Just try not to let the feelings consume you. Speak to your medical team, they will be able to help xx 

    With love 

    H

  • I’m not on tamoxifen but I relate to the tearful exhaustion. My personal view is yes, all these medications don’t help, I’m still on phesgo and I take medication for RA that I have too but. Jesus look at what we’ve been through, look at your list, two ops, radiotherapy, kadcyla, now chemo. You’ve been through the mill, there’s only so much you can cope with. I also found that when having chemo (I had 7 cycles 3 EC, 4 T) that a couple of days after I finished the steroid support I felt emotionally low, sort of day 4/5/6 of the cycle. I got what I refer to as the steroid dumps. I think when we talk about the effects of these treatments being cumulative, how you feel is exactly that, the effects of having all of this go on for so long, the effects of all those drugs. I’m a very upbeat person ordinarily but it’s very hard to maintain that. Don’t be too hard on yourself for feeling like this, it’s really difficult, please moan away, big hugs x

  • Thank you both. I am so grateful for this site and women like you who reply. It makes an enormous difference. Wishing both all the best on your journeys. Xx

  • We’re all here for each other which is lovely, because we get it. We’re not going to give a raft of motivational or dismissive nonsense, thank god for that xx

  • FormerMember
    FormerMember

    Hello, yes I've felt this way before. And I think it's ok to feel like it. You - we - have all been through so much and it does take its toll on us. I think feeling this way is a natural reaction to the medication, the surgery and to having to still function throughout all of it. Which isn't easy at the best of times. But I think it's good to remind yourself of how far you have come. Well done you, keep going, your doing fab! Slight smile

    And remember if you ever need to vent then we are all here to listen and support.

    Verity x

  • Morning Verity,

    Thank you for your reply. Today is a new day and the sun is shining so taken my dog for a walk with my husband which made me feel a lot better. I have now come down with a cold so maybe that is why i was feeling so run down. Wishing you all the best with your treatment. Thank you for your support. Xx

  • Hello Max

    Glad that you are feeling more cheerful today. You are doing the right things, enjoying companionship from your husband and dog, enjoying the sunny day and getting out in the air. I don't have a dog, but love to walk with my niece and her dog and sunny days help me too. I get the post steroid blues too. I did ask my GP if I could have more days worth to come down gradually. No go, I am afraid, as the effects are not good if we take it long term. 

    I think everyone here has their blue days. The thing is to make the most of your good days and to remember on the bad ones that these times will pass and we will get out the other end and off this rollercoaster.

    Wishing you all the best

    WallyDug

  • You still are doing well but your body and emotions have taken a battering and it’s bound to come out some way or other. World events aren’t helping. I feel wiped out today and I’ve been through a lot less than you. I hope you have a good BCN you can talk to, and you aren’t going through this alone. It will get better, maybe not as soon as you want it to, but eventually. And the storms have stopped, for now, and there are lovely Spring flowers outside, so I do help you can get to see them ,even if it is only through a window while you rest. All the best.

  • Thank you so much for your message it is a real help. Unfortunately, i don’t have a great BCN which is a shame. She told me after my surgery to move my arm and do daily tasks like - brushing my hair!! I had literally none. Still i have an amazing family so i count myself as lucky. Wishing every success on your journey. Sending you a hug and thank you for your kindness.