First chemo on Thursday and I’m undecided about trying cold cap! Anyone found it worthwhile or otherwise?

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I have many wigs stocked up, so am as ready as I can be for hair loss. I’m quite happy with the first three treatments (EC), but I’ve heard that my final three docetaxil has a risk of causing permanent hair loss (albeit quite a small risk). So thought I may try cold cap to minimise damage to my follicles. Anybody had good results. And, has anyone had their hair come back without any issues after docetaxil? Thanks! 

  • I met a lady on a couple of occasions and we’ve become friends and a man who I’m still in touch with too, when you’re chatty you will meet someone, I got to know a couple of nurses too, to the extent that one came to visit me after my mastectomy. I also had a couple of times where 3 or 4 of us started chatting, was nice, we had a rather sick laugh, shared jokes about some of the things we’d had said to us or experienced, we didn’t swap details but we shared something, you see some familiar faces and start to chat, with no partners or friends, it’s just us, all members of a crappy club, with sometimes different cancers but bonded by that shared experience. You can speak a bit more freely and you don’t know them in your real lives so you can share what you choose. Hope you all have the same experience x

  • Well done Erica, glad it was ok in the end even with the allergic reaction and that the cold cap was ok for you.  People on the ward can be variable, sometimes we all feel a bit down and other times more positive, hope next time you find someone you can have a good chat to.  Take care tonight, all the best

  • You’re so right, I got chatting to a lady in the waiting room and we now know each other’s full history Joy. It’s nice to offload with someone in a similar position (my lady had lung cancer), very sweet. I’m always up for starting a chat and quite often do. Sometimes listening to others makes one feel grateful and suggests that things could always be worse! Although, that’s hard to reconcile on some days! xxx

  • It is indeed but always, sadly true. Hope you carry on feeling ok xx

  • Thanks Anna, I’m sure I’ll be lamenting something or other in the coming days when my “high” wears off! Joy. Thanks for your kind words and encouragement xx

  • Hi all - I had my first session today too (EC) - did the cold cap and think that was the worst bit though it eased off. Felt fine during the actual drug bit. Few hours later now and I feel a little bit headachy and a bit nauseous, but not too bad. Good luck to all of you x

  • Well done to you; a step closer to the last treatment. Hope the CC works for you, I just didn’t want to spend the extra time in there, too late for me now though! Im expecting to be on my way to baldness by my next sesh… Although my nurse says that she has seen a few people that have managed to hang on to their hair (well some of it) with no CC (not many I’ll bet). My husband says I should let go of that hope, he doesn’t want to see me disappointed Stuck out tongue winking eye. Anyway, the best of everything to you, keep us posted xx

  • Hope you all have a peaceful night x

  • Thank you Blush

     I woke up a bit and I can best describe the headache and nausea symptoms as a very bad hangover Dizzy face Really hoping it doesn’t get worse. 

  • Oh dear, have you taken your steroids this morning?