Letrizole and zoladex

Hi and welcome to the forum.  I don't take either of these so can't help but if you but Letrozole and zoladex into the search box it will bring up posts by others and you can have a read through this and reply to any of them that seem relevant.

It doesn't sound like it's in your head to me.  There are so many different possible side effects of the meds we get given so it seems very plausible to me.  Best thing to do is to get in touch with your oncologist and see what they suggest.  They might be able to reduce your dose or switch you onto a different medicine.

By replying to you it will bump your post back up to the top of the list incase this time there is someone on here who has had similar that sees it and responds to you.

I'm on zoladex and exemestane but no issues like yours. There are 3 AIs, so you could ask to change from letrozole to one of the others. Exemestane is one of them.

I'm not sure it's that helpful to say it's in your head. I would try and get hold of your oncologist and see if you can switch, and also speak to them about the side effects you're experiencing. 

Hi Dawnypie1. I am on Letrozole and have been for 2.5 years. I don’t have the problems you have but i have joint pains and hot flushes especially at night

There are different medications you can take so it would be worth speaking to your oncologist or even asking your pharmacist as they are very helpful

Good luck. This must be so miserable for you

Thank you, I have a appointment next week il speak to her again.

Yes ,sorry so slow in replying. I have this trouble .it is letrozole (teva) make as I find it the least disturbing. I've been on it 5years and it is difficult. I fully understand your problem .I take loperimide first thing and need more at lunch time.  After dashing to toilet . The doctor says it's my age (76) that is part of the problem as the body is not so capable of coping . I take cocodamol as well .and can slow it down . But without these pills ,Hopeless . Even at that I'm no good in the morning ,as I know after breakfast im going to have to run  then take more pills and tea and settle for half an hour. Also im up during the night  which I never was .so that doesnt help the surgeon says when I've done the 10 yrs, at my age I should just continue with the pills. Like you ,its trying to sort out a way of life, but at least keeping cancer away xx

I was told that it's safe to have a break of up to 3 months a year (I've never done that long, but a month twice!) Would you consider trying a break then maybe a different brand like Accord? It affects out entire bodies, and although it's mostly the blood pressure, joints and memory it can affect other areas. I had a retinal detatchment after 2 months on it, which Moorfields blamed on the letrozole.

Thank you, it’s a nightmare, I saw my oncologist a few weeks ago and she’s referring me for the camera down my throat, but I paid for a 3 session of hypnotherapy and I have to admit it’s helped loads with my anxiety, but yes I’m taking 8 loperamide a day and I’m still going, it’s not right, but at least with the lepormide I can get out more xxx

Hi

how do you find these, side effects wise?

I want to ask for ovarian suppression and an AI instead of tamoxifen as I can see they have slightly better results but some people still seem to have tamoxifen and I’m not sure why some oncologists go with one over the other. Were you offered a choice? 

thanks 

My husband said the same thing to stop the letrizole, I said to my oncologist and she said no, it’s not the letrizole, and I’m scared to stop it, I’ve always had good results with my scans I don’t want to jinx my self xxx

Hi Dawnypie,

Yes, please don't feel you are alone in this. I have had the same reaction on Letrozole. I need to empty the bowels a number of times a day and when I need to go  I need to find a toilet quickly. It is one of the side effects that I find really annoying, along with the arthritic pains all over, the constant niggling headache and the sores in the mouth.