At my wits end

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My oncologist has not yet approved the letter to my GP outlining my treatment, including prescribing Letrozole. For the last 3 weeks I have been chasing this with the oncology BCN. 
I have now run out. My GP cannot prescribe as they have had no notification. My consultant is on leave. The BCN has updated the hospital system but my GP cannon see that. 

I’m both scared and angry that I am chasing this and no one else seems bothered. 111 cannot help. 

Rachel

  • Call the BCN now, demand that any oncology consultant that is around looks at your file and prescribe the drugs right now, not later today or tomorrow, so that you can pick it up at the hospital pharmacy or any pharmacy. 

    Find out, online, who the Executive Chief of the trust is, and copy any email you send to your BCN about it to that person, also let her know in the email that you are doing so. 

    At this point you need to start raising hell, even go to the hospital and demand to see a consultant who can prescribe the drug you have now run out of and need.

    Also, see if you can contact a Macmillan nurse, sometimes they can help with such things.

  • That’s so unacceptable, take GreyCats advice. And remember your coming up to 4 days holidays with new year 

  • This is why I’ve been chasing it for 3 weeks. Fingers crossed one of the BCN’s has emailed my GP as apparently they aren’t on the same system as the hospital…

  • And now my GP says that without a clinical letter (ie from a doctor) they may or may not prescribe tomorrow…

  • There must be other oncologists at the hospital who can help.  Mine has a main one and two who sometimes treat women in the breast clinic. If the hospital is nearby I'd go in person as someone must be there (wear an FFP2 MASK!). If not I'd call NHS DIRECT as doctors can prescribe and have it sent to your pharmacy. 

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Finally, BCN will mug an appropriate consultant tomorrow morning and get a prescription and hand it in at the pharmacy there. Not terribly impressed with my GP.  Edited to say I tried 111 yesterday and they couldn’t prescribe because they can’t see my hospital notes. 

  • Yeah. Your GP may not have been able to prescribe without the needed paperwork, but they could have initiated action, contacted the hospital. To tell you, "I cannot prescribe" and then do nothing is not very helpful. Angua1, will you let us know tomorrow? Also, what about the dose you were meant to take today?

  • I was supposed to take 2.5mg, but apparently missing a couple of days won’t be detrimental. I’m really annoyed how apathetic my GP’s staff were. I knew this was going to be an issue which is why I’ve been chasing for 3 weeks. It takes about an hour to get through to my GP each time to get dismissed by the receptionist. 

  • Believe it or not my oncologist forgot to prescribe it for months.It was only whilst waiting for a postponed COVID operation when my daughter said you are treating her for every thing that they realised I should have been on letrozole.  I then waited another 6 weeks until after my double mastectomy. Nobody seemed that bothered. Mastectomy tissue showed cleared herceptin tumour but a remaining  small  oestrogen positive one. You do have to be clued up and quite assertive, problem is when going through treatment you aren't always able to be. Good luck x

  • Angua1, I am thinking about you, wondering how things are going today, and I really hope that from now on things would go smoothly on this front.