Letrozole side effects

Think this is the drug that I will be on after my radio therapy treatment . Would be interested to know of peoples past experiences of this drug . 
And of course things that worked , didn’t , tips and hints.

Thank you

Penelope xx

Hi,  I saw one of my breast cancer nurses today and after discussing my aches and pains she suggested taking the Letrozole at night,  I have been taking in the morning so will try this as well and hope it helps,  when I first started taking it about a month ago I was getting dizzy spells, especially when lying down but that seems to have stopped now.

I've been taking Letrozole for three months. I've found taking it mid morning works for me. I'd been taking it after breakfast again instead for a few days but just had a dizzy turn earlier so back till around 11 for me. Night time is a possibility. I seem to have most of the side effects on the leaflet, the worst being inability to fall asleep and increased urination. This, together with the sleep element has been horrid; finally falling asleep after 1.5 hours only to need to get up to pee umpteen times a night with the can't-sleep again in between. Last night saw a break through when, on the advice of my BC Nurse u took a Piriton tablet and slept 9.30-4.30. Up to pee and slept again till 6am. Amazing. All good wishes for your own journey to wellness.

Thanks for the heads up everyone .

Still getting through the aftermath of radio therapy . Itching bad now , on day 6 post treatment .

Iy would seem there are SE to all treatments  
xxx

Right after I wrote this I started itching all over my body. 2 days later i had broken out in a rash which turned into a full body rash from head to toe. I ended up in the hospital because it started to get into my mouth. I had one of more serious reactions to Letrozole that has been seen. They have been pumping me with lots of steroids and other drugs in addition I have to apply a gel 3x a day. I can see a few places where it is getting better. But, as the doctor said it could get worse before getting better. while I was in the ER they also found that I had Gall stones so those have already been removed but I need the Gall Bladder removed, which they cannot do until the rash is gone from my stomach. This has been a nightmare. 

Hope you get better soon 

Hope you soon feel better.

Sounds horrendous. Hope you feel better soon. 

Hi sorry, you are having such an awful time. I had weight gain, lots of aches and pain, sleeplessness, eyesight problems and urinary frequency especially at night plus the occasional accident out on the street when I just lost the lot. I changed from Letrozole to exemestane which I find a little better. I was referred to the urologist and was given a very full examination. I am going to see the physio and am hoping that helps. I was told to reduce all liquids (I mistakenly thought I was being healthy by drinking more water) and to only drink the occasional decaffeinated coffee or tea and no wine! I think going to decaf tea has helped a little. I also was given Mirabegron 50mg modified-release tablets which help. I have recently had courtesy of my hospital Macmillian centre acupuncture and I do think it has made a difference to the aches and pains. I am also taking CBD oil and think that helps too. My eyes are a mystery to me as sometimes I can see more or less normally but at other times things are blurry. and my eyes often get gritty and stingy. and sore. My optician gave me distance glasses for driving and Hycosan drops for dry eyes.  Goodness, what a very boring list. BUT so very glad I am not itchy, sounds horrendous and as it's also a rash you probably can't even get relief by lying in a tepid bath. Hope the antihistamine continues to give relief and it improves soon.

Can I be very cheeky and ask how you got rid of the gall stones. This is for my son who has had half a dozen episodes of severe acute pain lasting between 5 and 7 hours. He first got an episode in May, has had a scan to confirm it is gall stones and basically has pain every day although not for such extended episodes recently. He was referred to the private hospital (NHS patient) but has been told it will be at least 4-6 months before he gets a gall bladder removal operation. No one has suggested there is anything he can do to reduce or get rid of them while he waits for this operation. Thank you

Good luck

Sorry, RandyLyn and Mmcg I conflated you both into one person. Can only put it down to my lingering chemo brain. So very very sorry. I feel so rude and disrespectful my apologies to you both x