Hi everyone,
I’m currently halfway through my 6 rounds of chemo and I have to say, struggling quite a lot. The first three was EC and after the second round I was hit for the first time in my life by a migraine and then I caught covid and was hospitalised for 6 days. I had crushing headaches and nausea with the covid, and the nausea has been constant for me for the 10 days approx., or more, following each EC session. With hair loss I’ve been quite lucky, I’ve cold capped and while my hair feels very thinned out and sheds constantly, I’ve managed to keep a semblance of a head of hair for which I feel very grateful. Up next, 3 rounds of Docetaxel and I so wish to believe that it will be easier. I’ve found the whole thing so hard I’ve honestly felt I was going to die (covid may well have been largely to blame for this, but it’s hard to say as it all blends into one) and just not be able to get through it. All I can think of is the day it will be done and I will finally be free of the PICC line and the drugs going into my body. I know this is also wrong of me to think, because actually the drugs are saving me and will hopefully prolong my life, but I can’t stop feeling like it is poison making me feel so ill all the time.
Wow, massive download of complaining over! Really what I would like to know is - what was your experience of docetaxel compared to EC, if you had this combination? Plus any magic tricks for not feeling constantly wretched and keeping the spirits up would be so so welcome
Thank you and my best wishes of strength to you all!
Hi I'm in similar position, just had third ec and docetaxel up next. Oncologist said this was worse than ec but he also said he tried the cold cap and could only manage 8 mins so that suggests were stronger than we think!!! Mixed reviews on here, I'm talking anti sickness and paracetamol regularly, don't intend to wait for pain or sickness. I'm doing injection at night so back pain doesn't hit till morning, found that really helped me sleep a bit better. However the steroids really affect my sleep pattern.
I'm dreading the next three but were half way there!! stay strong xxx
Yes a nurse said a similar thing to me - that she tried the cold cap and only managed 10 mins! Have you had much hair loss? Sorry to hear your sleep pattern is messed up. I’m doing Zoladex injections for fertility preservation and I think that affects my sleep more than anything. But it’s hard to say! Do you suffer from nausea at all on EC or have the anti sickness tablets kept it at bay?
when is your first docetaxel session?
As a very generalised rule, it seems that people who find EC tough get on better with docetaxel and vice versa. Docetaxel is certainly different and as others have said, you shouldn't feel so sick on it
I don't think having covid during chemotherapy would have been pleasant at all and that may have been the worst thing of all. Poor you, what a terrible time you've had.
There have been a few threads on docetaxel and EC recently so worth a search - I've commented a few times on what symptoms I had with both.
I wonder if your headache/migraine could be caused by cold capping? I was told that was a risk and as I am headache/migraine prone then I chose not to cold cap. Of course, it could also be covid or the EC.
Chemotherapy is poison, it is killing your good cells as well as the cancer and that's what gives you the best long-term outcomes. Whenever I was feeling particularly bad, my mother would say 'if you're feeling this bad, the cancer will be feeling worse'.
Stick in there, you will get through it and start recovering.
First docetaxel is 13th December. Yes the nausea has been constant for the first week or so then seems to disappear. I take the anti sickness breakfast lunch and tea time. The five day tablet given on chemo day certainly didn't last five days for me. Hair has been shedding but I think only I notice, don't think anyone else would. It's worse when washed as so dry and knotty. Xxx
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