Hi I'm not sure if any of you lovely ladies can help with advice as I'm still a bit in the air about my diagnosis. I was told I had DCIS following mammogram and two biopsies plus MRI week before surgery and had a mastectomy with two lymph nodes removed. Follow up appointment month after surgery and was told it was 70 mm DCIS and 2 mm IDC and lymph nodes were clear. A lot of ladies talk about grades, stages and numbers regarding postitive, negative. I was never told anything apart from the size of the lumps after surgery and that I have to take tamoxifen for 5 years. Not sure if I have missed being told some information from my consultant or not. Thanks for reading.
Hi, I was never given a stage or any numbers, just the size and I knew it was grade 3, so aggressive and that's why I had chemo first. Have you had any letters from the consultant confirming your cancer, as I think this information could be on these. Maybe have a chat with your consultant and see what they say, or ask your GP as they should have your letters on file and can explain them.
As the ladies below have mentioned you should receive a copy of the notes from your consultation appointments that are addressed to your GP.
I received mine a few days following my Surgeon and then oncologist meetings. These notes clearly state the type and size of tumour being addressed and the proposed treatment. If you have had a number of appointments and haven't received any notes yet I would query it with your treatment team/ breast care nurse or GP
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