My appointment with breast surgeon has been brought forward. Panicking!

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I had an abnormality picked up at routine mammogram screening and attended our local assessment breast clinic. Diagnostic mammogram, ultrasound and 4xcore biopsies done within a week with radiologist saying she was of the view that I had breast cancer in my left breast and that it was good I had gone for my screening as the lump (7/8mm ) could not be felt via examination. She said lymph nodes looked OK and she was not concerned. She asked if I'd had a recent vaccination as the lymph nodes looked like I had been vaccinated  and I confirmed flu 2 weeks  previously and covid 6 days previously both in that left arm 

I was given an appointment with the breast surgeon for 25th November ( earliest appointment available) but breast care nurse said she was going to request it came forward but would not likely be before MDT on 16th November. I then got a phone call today saying my biopsy results were back (so dast?!!) and there'd been an MDT meeting today and could I come in this Thursday at 11.20. They would not tell me anything on the phone which I know is usual

I fell apart and I'm now running all kinds of mad scenarios through my head. I had prepared myself for a confirmed diagnosis of BC and was accepting of that but this unexpected speedy appointment has sent me into a tail spin and I'm convinced of all kind of sinister other possible worse scenarios. 

I phoned my original breast nurse who gently reminded me that she was going to ask for an earlier appointment and I should not read anything into it but I can't shake the paranoia right now. I'm trying to focus on how efficient and quick an experience I'm having and the facts I know so far ( estimated size of lump / lymph nodes appear OK / likely early BC) but how do you stop those darker thoughts from crowding in?? 

  • Everytime they change a appointment you will panic it is impossible not to. 
    cancer diagnosis to start of treatment have a target given to the oncology units so it could be they are trying to meet that target also it may mean they have had some capacity injected into their service and they using it by making appts earlier . You don’t know if other pts have also been seen earlier than their original appt 

    waiting is always the worst part of this journey so try to find a coping strategy mine for example is walking  the dog and riding the horses. 

    • I understand your alarm at this happening. I had my biopsy and scans results moved to an earlier appointment. The hospital were  putting on extra clinics and because of that my appointment was brought forward and I actually had surgery before I was due to get the test results. My nurse and consultant both said don’t read anything into the scheduling of appointments, especially as at the moment hospitals are being encouraged to get through backlogs (not that there were any in the BC dept). My hospital doesn’t routinely make appointments until they have the results as it can be upsetting and alarming to patients. 
  • Hi , I agree with , try not to read anything more into it other than that the results are back so no need to wait. I do think that hospitals are trying their best to get people seen so it’s likely they’re just being super efficient. I had some unexpected blood ‘spotting’ last summer, saw my GP (yes even in Covid times!) who said she’d refer me for a scan. I expected a wait but got a phone call the next day with an appointment for the following day! Part of me was relieved to be seen quickly but another part thought it must be very bad to be seen so urgently. At the scan I commented about the speed of referral and the radiologist replied that they are trying hard to fill every list as there’s such a backlog. Mine was probably a cancellation but was apparently definitely nothing to do with it being any more urgent. Thankfully nothing sinister was found so that was that, dealt with within a week. 
    Will be thinking of you on Thursday, do let us know how you get on. Love and hugs, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hi Jurassicgirl

    Welcome to the forum and sorry to hear that you may have breast cancer. Hopefully you don’t but if you do breast cancer is very treatable these days and it looks like they caught it early. Your medical team will do everything in their power to get you better.

    I was diagnosed with triple negative breast cancer last year. The tumour in my breast was slightly bigger than yours (16mm) and I also had a small tumour in my lymph nodes. I had chemo, surgery and radiotherapy and I am now cancer free. When I was feeling down I found going for walks helped and I also listened to some guided meditation which also helped.

    Wishing you the best of luck with your appointment on Thursday.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Jurassicgirl. Like you, had mammograms, biopsies with the radiologist. I then returned a week later to be told I had invasive lobular carcinoma. On Friday 22.10 I had an MRI and was told it would be two weeks before the consultant had the results so didn’t expect to hear anything for at least that time. Completely out of the blue I received a call on Monday 25.10 asking me to attend an appointment with the surgeon on 28.10. I can’t tell you how shocked I was to be called in so quickly and for three days of my mind running riot with all sorts of ideas about why I had been called so quickly. A similar thing has happened again. I had a further ultrasound last Wednesday and didn’t think I would get called to see the surgeon again for at least a couple of weeks, but yet again I have received a call (Monday this week), asking me to attend an appointment with the surgeon this Thursday. I am not sure really what it means, but I can only take comfort from the fact that they seem to be getting on with planning and starting my treatment. I also know that there are certain targets that they need to hit in terms of making a diagnosis and starting treatment. I think these are given on the NICE website and if I can find them I will send you the link. If you can, try not to panic. It’s incredibly difficult to stop those dark thoughts and fear. The only thing I am gradually learning to do is to try and stop the thoughts as soon as they start and remind myself only to think about the facts I know, rather than the facts I don’t. Take care and very best wishes. Ros. 

  • Thank you Rosebee and all you other lovely ladies that have taken the time to reply. I keep telling myself I'm fortunate to have had my screening mammogram when I did, fortunate I got seen so quickly in our one stop clinic and now fortunate my biopsy results are back super quick.

    I was accepting of the likelihood of it being BC and had started to get my head round that but its the worse case scenarios that go through my head that leapt in with a vengeance today. I guess I equate speed with seriousness and got used to the drop in timeliness in the nhs due to covid. I need to remind myself that they are under pressure to meet targets and value the fact that it has been a really quick turnaround.

    I see you too are seeing your consultant on Thursday Rosebee. I wish you well and sending hugs 

     I wouldn't wish this rollercoaster on anybody xx

  • Like you, I have been equating speed with seriousness. Breast cancer is serious, but I think we need to move away from this idea and understand that in terms of our cancers the medics are getting things done as quickly as possible. All the very best, do let me know how you get on (only if you want to of course). Ros, 

  • Do you see my panicked post from last week? Summoned by the hospital? Turned out they’d just rearranged the surgical list and my new surgeon wanted to examine me. I was in there 20minutes so felt a fool for panicking!