Having been unfortunate enough to have had a bilateral mastectomy.
My question to those like me who have had both sides operated on do you think that there is enough help and understanding for people who have both sides affected. I don't think that I have received enough understanding of how difficult it can be when both sides and arms are affected.
Any videos I see , apart from my own physios, are for people who have one side affected. Often they will say " use your non operated side to help you do this and that" ! Furthermore , we all know that cording and seromas are painful but no full understanding that for us bilaterals, double the pain.
Often you hear women told to sleep on your non operated side or back . But what about me? Just my back then? Won't be long before I have a bad back. When you read advice about doing daily tasks it often says " just let your non operated side do the work for a bit" I wanted leaflets and advice for a double mastectomy patient. Has anyone else found that there is little understanding that there can be added difficulty for patients in this situation either double lumpectomy or mastectomy?
Cheers
I’m just at the beginning of my journey, and have cancer in both breasts, invasive ductal right side, lobular left side. I am beginning to realise this is quite unusual, and I agree that there doesn’t seem to be much out there for us bilateral ladies. Your posts are very interesting reading fo
me, and your experiences are so useful. Will follow and appreciate this thread
