Hi, as my cancer is not curable, I have chosen to not take the oral chemo offered to me but I'm having family members trying to persuade me otherwise.
I really don't want to have this treatment because I've had some horrible infections relating to the cancer and I would prefer quality of life over quantity.
Has anyone chosen the same route as me?
Thanks.. Lisa
Lisa, you absolutely have a right to make your choices without having to deal with pressure from others. A Macmillan nurse should be able to help get them to understand this, so if you feel ok about approaching them, I would very much recommend enlisting their assistance in getting other people to accept your choices, respect them, and support you.
Hey Mel. I'm good thanks I actually ended up trying the chemo tablets for two months and it was horrible, not something I was prepared to carry on with. I'd had SABR targeted radio a year prior to.that which I found ok. AIso it's been almost a year now with zero treatment, I stopped letrozole and everything, literally only on daily morphine and , to date, no growth/spread so far. I did feel guilty for a while, refusing treatment, but my McMillan nurse assured me I wasn't alone. Ive had the odd health issue for sure but nothing major. I have left work due to extreme tiredness, but it's done the trick. I've had 3 holidays abroad and spent so much time with my loved ones, which I was too tired to do before. I would not have had the energy to do these things had I stayed with the chemo. This w
as the right decision for me, abd i totally respect those who see it through. 100% happy with my decision, making my family happy in return . I hope you are managing well with your own health Mel, life w
ithout treatment has been the best decision for me, I was sick and tired of being tied down , sore and exhausted, to extend my life but not be able to do much in the process? Not for me! Quality over q
uantity the whole way in my opinion, but your experience could be totally different. Follow your own instincts...you must do what is right for YOU, this is your life, cancer has taught us to embra
ce it .....we don't have much control over the time we have left, but we do have the control over how we want to live it. I hope this has helped a little bit. Sending you all the love and best wishes your journey Mel
Thank you so much for this. It's exactly what I did, and it helped my son especially, understand. My nurse is just amazing, and she obviously explained to him less emotionally than myself . He totally understands my decision a year down the line. Thank you again xx
Thank you for taking the time to answer my question it means a lot and I’m so glad you are happy, they say knowledge is king and it’s good that you made your informed decision for yourself, I think when the time comes that my medicine is interfering too much with living I too will be brave enough to make the right decision for me.
Wishing you all the best x
Hey Mel, I'm so pleased you are happy with your treatment and hope it continues that way for you. I admire your bravery to keep that fight going. I think we are all brave, just for dealing with it rregardless
apologies for the extremely long rant of a reply, I must've needed it haha!! Love and luck to you and your family xx
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