Radiotherapy 5 day intensive v 15 day treatment

  • 18 replies
  • 289 subscribers
  • 4822 views

I am wondering of people's experiences with the new 5 day radiotherapy that's more intensive  It seems to get it over quicker but am concerned about the side effects and that it is a new treatment brought out at the start of covid.  I've read of a couple of long term bad experiences and feel scared to try anything new.  After a chat with my oncologist I've decided on the 15 day treatment but wondering what other people's experiences are. I've been prescribed Letrozole but the side effects look serious, from weight gain which I really don't want as have been trying to lose it for years, to affecting bone density and some seem to indicate I'll go through the menopause all over again complete with possible hot flushes.  I know this is worst case scenario but would really value other people's thoughts and experiences.

  • That's all great to hear.  I'm now on the two week pathway for further investigations for possible bowel cancer.  The sample sent off has raised concern.   It looks like that appointment and the radiotherapy appointments for breast cancer are going to coincide.  You couldn't make this stuff up.

  • Gosh. You really are going through it. Do they think bowel might be a secondary cancer to the breast? Let’s hope it is all ok. Gosh the worry of it all. Good luck Fingers crossed 

  • So sorry you are going through all this.

    Sending you good vibes.

    Hope the results go the right way x

  • It's all unknown to me at the moment.  They told me they had got the breast cancer with clear margins and the radiotherapy was to prevent a return so I'm praying it's not a spread.  It may not yet be bowel cancer but I am high risk due to huge family history on Dad's side   Dad died of it aged just 50 poor man x. More waiting and trying not to let my mind go too nuts with this in the meantime.   It looks as if I'll be getting the appointment for the colonoscopy in the middle of the radiotherapy for breast cancer.  

  • Thanks xraygirl, I'll have to put my big girl pants on again and stay brave Grin

  • That shouldn’t matter. I had a day off from radiotherapy due to my mums wake. They are very accommodating. Good luck with your screening sounds like it nothing to do with BC or they would of said anFingers crossedhopefully being extra careful because of your family history Fingers crossed

  • I finished 5-day treatment five days ago. I would recommend it. My skin is pink and I am a bit swollen and sore, but nothing like as bad as recovering from surgery. My energy levels drop rather suddenly in the day and I have vague feelings of nausea, which I definitely wasn’t expecting. Tiredness started day 4, pinkness day 3. On the first day I had stabbing pains.

    The nurse in my exit review said the tiredness could last up to a year;;  some of the radiographers manning the machines (different each day) thought it was the journey, not the radiatiob, even though the journey is exactly the same as my journey to work anyway. I felt a bit gaslighted so was more comforted by the final review.

  • Former Member
    Former Member

    Hi Norah H

    i have only been offered  a 5 day radiotherapy course to follow my chemotherapy treatment, in Cornwall.   This was interesting for me as I took part in a clinical trial enduring 5 days of radiotherapy in 2013, while I did have some slight swelling which meant aligning my tattooed dots a bit tricky for one of the sessions, I just felt tired, but it seems it is now generally accepted as the way to go forward.