Have you been given any painkillers? When my pain gets bad (although I doubt it is as bad as yours) I take codrydamol but won't pretend it makes a great deal of difference. If it is at night and I can't sleep I take it with some hot milk with honey and that makes me feel comforted enough to drop off. Ask for a change to either letrozole or exemestane. I changed from Letrozole to exemestane and find this marginally better. My experience is a little compromised by having some osteoarthritis along with this.
Thank you so much for your reply, and thank you for the link. The pain has escalated and like you I have osteoarthritis and osteoporosis. I will look into your suggestions as any help would be welcome. Thank you and take care.
We sound quite similar. If you come across anything that helps do please let me know and I will do similar.
I think I saw on another stream you were asking about CBD. I started to reply but then for some reason, I lost this thread and couldn't access what I wrote. If it was you, I do take CBD oil. I originally took it prior to my cancer diagnosis when I was getting particularly bad pain in my knees and ankle (I injured my ankle some 17 years ago, was told at A&E to walk on it and hence my problems began). I took Jacob Hooy from Holland and Barrett and must confess I was taking it frequently and quite a lot. The taste is disgusting but it did seem to help. The pain didn't go completely but it became bearable. I also intermittently had steroid injections which worked for short periods. I stopped the CBT when I began chemo. My oncologist was happy for me to continue but I decided not to risk compromising the treatment. I don't know about you but the silver lining to my cancer treatment was that my osteoarthritis all but disappeared. The chemo nurses said that other chemo patients reported a similar experience - presume it was the amount of oral steroids being given to me. Pain has now returned with the added joint pain from the aromatase inhibitor. I hate and very much resent it. I try to exercise it daily (Online Zumba session with Cindy via YouTube) and a daily 30-45 minute walk. I don't enjoy it much because of the pain in my feet and ankles. I have resumed the CBD oil I am taking one which is supposed to be stronger than the Jacob Hooy but I am not sure how effective it is. It is expensive but I basically go for the best Holland and Barratt offer. I take the drops under my tongue, I think that is the most effective. I usually take it twice a day. I am used to the foul taste but used to follow the drops with apple juice to help alleviate it.
I am not sure how much it helps but I think a bit.
One thing I find very annoying is being told that it would help if I lost weight. I dare say it would but I would like to know how. One reason I stopped the letrozole was despite managing to lose 2 stones I immediately put it back on. The exemestane hasn't helped me lose this but my weight is a least stable all be it in the very obese category.
Sorry a long rant ignore if you weren't asking about CBD
