It’s been 3 weeks since the surgery (mastectomy) and node biopsy. Initially they said the nodes are clear From cancer on the ultrasound but today they said they have found cancerous nodes. Although they said previously the cancer is her2 negative, now they said we have to wait again for the pathology results to confirm this.
I am really worried as they have not been able to give me a time frame this is expected. They said have to wait and it can take time, then depending on the result may need another surgery for axillary clearence or will need to talk to oncologist for chemo. But I’m aware that these appointments are also going to take time…
how long did you guys wait for results? Am I being overly impatient ?
Thank you to everyone who wrote on my thread. I called the bc nurse. They said they found a fourth tumour that wasn’t seen on the ultrasound and therefore they couldn’t take a core biopsy before the op. So now that’s why we are waiting.
It’s really scary because seems like the mammogram and ultrasound missed a whole tumour and also the lymph nodes! Well I’m hoping it was missed and it didn’t just grow or spread while waiting for the op. She Said it will be two weeks. They ordered bone scan while waiting for the op, haven’t heard of the ct yet but the bone scan is nezt week Friday, which means that might add another week! As their mdt meetings are normally on a Thursday. Just feel so gutted, not sure what to do. I know there’s probably so many people waiting to have a bone scan as well, but it’s just so stressful as it’s adding another week. And then depending on that will have to wait weeks for further treatment as well!
The other thing is I don’t know whether the cancer can spread quixkly from the lymph nodes to the body? I feel so upset because initially I did ask for ct before the op, and they said no as they didn’t see any lymph node involvement. Now because of that she has to have more treatment and possibly spread… I don’t know why they don’t do ct as a routine thing. I know it’s probably due to the budget but in my opinion this wastes much more resources as now there might be a second op.
My tumour is 19mm so if it was 21 mm I would definitely be having chemo but because it’s 19mm they want to check if I need chemotherapy so have requested my reoccurrence rate to help determine this. I’m sure there are ladies on here who would no better than me!!
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