Hi ,
l have had my chemotherapy and operations for breast cancer, my last chemo (FEC) left me with Peripheral Neuropathy in feet and fingers, l was able to still walk and use fingers , l was put on Kadcyla 3 weekly , and to take hormone tablet Letrozole daily, So far l have had 2 Kadcyla treatments, the first one l felt sick for a week after ( took sickness tablets) and my PN was abit worse that first week, but then sickness went and my PN calmed down, my second Kadcyla treatment - felt sick for around 9 days and my PN was abit worse, on the 8 day l was to start my Radiotherapy - so was still feeling abit sick and my PN was abit more tingly, had 2 Radiotherapy treatments - my sickness had gone - but my PN was still tingling more, had weekend off from treatment- start off 5 Radiotherapy treatments - by day 3 my PN had become much worse, l was due a phone call from oncology consultant on day 4 , my P N had now spread into my face lips tongue - my feet and now legs and hands were all stinging plus some electric shocks, l was very worried - and asked the consultant could the radiation be coursing this, she said no?, she has stopped the Kadcyla and my daily hormone tablet, but said to carry on with radiation, l had my last radiation treatment yesterday , around 3 hours later , l got a acheing pain in the back of my head and neck- the whole of my face was madly tingling my lips felt numb and my tongue- my feet legs and hands arms were all tingling and my feet to walk were stinging, l did phone oncology it was Friday evening , and nurse said if it gets any worse to phone back, all the symptoms l had stayed about the same for next few hours , l was able to sleep abit , in the morning today l still have tingling in face - hands feet - not has bad yesterday evening, my problem is l think the Radiation is coursing my PN to become worse and my acheing back of head, of which l have never had before, my next radiation treatment is on Tuesday , and l am now worried sick, l don’t wish to have it, l have not had Kadcyla treatment for 2 half weeks , why would it suddenly flare up - with head neck pain?, l have read that radiation treatment can course nerve damage it’s rare but it can happen, l am having the radiation to my breast underarm and up to my collar bone, l don’t know what to think ? I would rather that my radiation treatment was stopped until it’s know for sur what is happening to me, l don’t want any more nerve damage,
l don’t know if any one reading this could say if they have ever heard of radiation treatment effecting a body like mine is going through, l have had 7 radiation treatments so far, with 8 more to go, what do l do ?, l have to protect my self , because something is not right , what happens if l ask for the radiation treatments to stop.
l hope writing this might give me some advise from your selves, Thank You , if you can,
Hug to All.
Springat Last
