Diagnosed today

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Hi 

New to this.. I am a 41 year old who has had pulmonary embolism in 2012, I am now on warfarin for life. In 2018 I found a lump and was bleeding from my nipple on my left breast. Terrified I went to see doctor, referred to breast clinic. It was a hematoma. So 9 months ago I found a tiny lump right under my left boob but I was in the process of buying a new home and just thought it was another hematoma. So 2 weeks ago after finding another lump in the same boob I finally went to the doctors. I had a referral to breast clinic again and had mammogram (my first one) ultrasound and 2 biopsies. It was obvious I had a hematoma and it collapsed as they did the biopsy, they did another and I saw the doctor and he said it was just cysts and hematoma and I would receive a letter to confirm biopsy results. I was relieved and went home. Yesterday I had a phone call from breast clinic saying they hadn't booked me a follow up appointment and could I come in today at 10.40 and I should bring someone.. obviously I was worried. I took my friend and yep I was diagnosed with encapsulated papillary carcinoma in my left breast. I have to have a MRI scan to see the extent of it as apparently I was sent away thinking all was OK. I was upset but now I'm numb,feel weird and I don't know just odd. 

Sorry to waffle on, sometimes its nice to write/text what your feeling 

Emma xx

  • Welcome although I'm sure you don't want to be here. Sorry to hear you have been diagnosed today. Click my name to read my story. Getting a diagnosis is quite scary and a lot to take it. I cried for 2 days after I got mine. Everyone reacts differently. There is no right or wrong way. Hopefully, the hospital has a plan in place for you, once you have your MRI scan then they will know more. We all hate the waiting game so suggest you try and keep your mind occupied to stop it running off by itself. Write things down - questions, feelings etc as this may help. Feel free to message here too. You aren't on your own. 

    Keep going ... one day at a time xx

  • Hi 

    Thank you for replying, I've read your story. Yes that all seems fast with your treatment, I was told as soon as they know how much cancer I have (they should know but fobbed it off as hematoma) and if there is more than one kind (common with the one I have) then surgery will be within 4 weeks. 

    I just feel like this morning was a bad dream.

    How are you doing? What were the feelings during everything? I expected to cry constantly but I haven't. 

    Xx

  • I actually didn't have a good experience. At the consultation, I got a foreign registrar who although spoke good English, I found it wasn't what she said but the way it came out. She kept muttering how I had been on pill a long time (30 years on and off) and my body didn't need the hormones and probably was just a cyst but as I was here she'd get them to do ultrasound and mammogram and biopsy. A week later at results, she just kept going on about how they found this lesion.  She never mentioned cancer at all. I only twigged cos there was another nurse in the room who explained in more detail what kind it was and more about plan. 

    After 2 days I did stop crying but felt very low. I couldn't quite believe i had cancer. I felt so relieved after surgery and I got my results that it had all been removed. I've been very emotional as I've had to come off pill and my hormones are all over the place. Some days I'm matter of fact, others I've just cried intermittently.  It does vary and there is no right or wrong way. Everyone reacts differently. Stress levels, anxiety and uncertainty have not helped.

    Its been the uncertainty and not knowing- of certain procedures that has left me feeling very uncertain. I was given rough timescales for things but covid has delayed a few things so for eg I was told radiotherapy 6-8weeks after surgery but in reality it will be 11 weeks. I had treatment and surgery at The Nightingale Centre/Wythenshawe Hospital but have transferred to The Christie for radiotherapy. I'm just plodding on (and trying to work from home sporadically to keep myself busy) but my motivation and enthusiasm for work is non existent at the moment. Taking one day at a time x

  • Hi Emma, really sorry to hear you have BC, it's the most scary thing in the world, waffle as much as you like, the ladies on here are the only ones that will understand what you are feeling, they will also be able to help you through your treatment, I finished 10 days ago, I had 7 Chemo, lumpectomy and radiotherepy and targeted therapy so I was in treatment for  15 months, you will find that everyones cancer is different and every treatment is different, the waiting is the hardest, once you know what your treatment plan is you can start trying to make sense of all this, hope this helps, thinking of you  Love from Ann

  • Hi Emma

    It's a total shock isn't it. I went from finding a lump on the 7th June to surgery  7 weeks later on the 2nd of August. I'm now waiting to hear about my results and will start chemo in September.

    I cried all the way home when I was told at the very first appointment, I had no one with me. The BCN said they were pretty sure it was cancer but would confirm 2-3 weeks later, when the biopsy results came back. At the second appointment I was allowed to take my mum with me  but I ended up comforting her as I knew it was cancer and I was further down the road of acceptance than she was.

    Friends and family have been amazing. I've been very open and honest about my diagnosis as I seem to get strength from peoples support. I've not googled but have used Macmillan and Breast Cancer Now as my points of reference. Reading blogs and chatting online with other women has given me a great understanding about breast cancer.

    I read The Complete Guide to Breast Cancer by Greenhalgh & O'Riordan two British drs who both have had breast cancer - honestly I would recommend anyone to read it whose just been diagnosed with breast cancer.  It's very practical and down to earth.

    I've also got a blog on here which has helped me get my thoughts down too.

    Lou xx

  • Hi, I am currently waiting my results and believe mine is encapsulated papillary carcinoma. What did your other tests show, did they advise a grade. Best wishes xx

  • I’m seeing my surgeon next week for pathology results. I know it was 35mm. It’s stage 2 lobular breast cancer and I’m triple positive.

    I do know the 3 lymph nodes were clear so that’s good. 

  • Hi sorry for the delay in replying. I went for a breast MRI scan and went back for the results last Friday, I was hoping I would get my treatment plan but no, they told me the initial cancer is 2cm and I have other lumps/ lesions that total to 8cm so I have to have an ultrasound and more biopsies this Friday. If there is no more cancer I will have lumpectomy and if there is I will have to have mastectomy. Good news is I shouldn't need chemo as this kind of cancer won't spread from the breast. Possibly need radiotherapy but not sure yet. Have you found out more about your treatment yet? Xx

  • Hi have you had your results yet, how did you know yr lymph nodes were clear.  Best wishes xxx

  • What was you er and pr, I think my er is 8/8 and p/r 7/8 xx