Bisphosphonates problems ?

 Hi Casput

I am on bisphosphenate infusions every 6 months for 3 years. I have had two already, first one was in February and then again another dose last week along with my Herceptin and Pertuzumab infusions. Nothing really to report. It is not like chemo and I have not really had any side effects from these. All good as far as I am concerned. Bisphosphenate makes it less likely that I will get bone mets later, so glad to be getting it.

Wishing you all the best

Wallydug

Casput, just to let you know from another perspective too, I take daily tablets (Ibandronic Acid) rather than Iv infusions. It was a decision I made as my veins gave up the ghost towards the end of my chemo. It is so much more practical to have the iv I would say as with my tablets I have to take them every morning as you can’t eat/drink anything but water 6 hours before and half and hour after taking them and you must remain upright for an hour after taking it. I have been told that I can revert to iv if I want. I’m not sure whether to do this. I was just fed up of the chemo unit and cannulas! I had a bit of bone pain but hard to tell if the Exemestane, Zoladex or after effects of active treatment?! I feel quite a bit better now. It was just when I started taking it. My Nan has the iv infusions and can have flu like symptoms for a few days after but she is in her late 80s. I suppose everybody reacts differently but I wanted to share my own experiences with you. 

Warm hugs,

Bekky

xxx

Yip I have the infusion every six months. I’ve had 4 so far and just felt a little tired after them.

Like others, I'm on the infusion every 6 months and I've had one. Not really much to report either. They said to me that you can get a bit of pain afterwards as it sets to work on any issues with your bones (that's how it was described to me!) but I think I have pretty good bones from running so I didn't really have any side effects.

I had to take high dose vitamin d and calcium for 30 days afterwards, which they gave me to take away.

Hi  Casput

I'm on infusions had no 4 in June as someone said a bit fluey  for couple of days .plus some bone pain.

After no3 I got my first ever UTI started same day as infusion . No 4 I had kidney pain and today another UTI . Apparently it a strange one and resistant to a lot of antibiotics doctor thinks may be linked to Zoledronic acid . 

Something else to watch out for

Thanks for the input everyone. I am going to look into having the iv infusions as the tablets sound like they can really effect your digestive tract quite badly. 
Stay well hugs x