Hello everyone,
First time post for me- I am 34 years old and was diagnosed with Grade 3 Triple Negative BC in Jan this year. Following six months of chemotherapy, I had a single mastectomy and LN removal almost a fortnight ago. I’m doing my absolute best to exercise the affected area as per instructions from the breast care team i.e my arm and shoulder following my op but I am finding it difficult (especially the advanced exercises) and my armpit is completely numb. If anyone has had the same surgery, how long did it take before you started to regain feeling and use your arm fully? Thank you.
Me too. Mastectomy 5 weeks ago and lymph nodes to be removed in 2 weeks. Worried it may have spread.
Snap, but my lymph nodes are being removed Friday. Currently in isolation.
ive managed ok with the masectomy, really worried about Friday. Feel like it’s going backwards! Just started driving again and I’ll be back to square 1.
How are you after your Masectomy? X
Hi. I have 2 weeks to go and I feel exactly the same as you. I send hugs. Please keep in touch. Xxx
It takes a lot of time. I haven't had the numbness you're experiencing, but do have weakness, which drives me mad that I can't now do what I could. Needed help from a kind Nurse because I couldn't get the gown straps done up at the back when having a bone scan on Monday. Just keep going with the exercises, and believe things will improve. You've had major surgery and the body doesn't like it. Keep going and don't give up as it's so easy to give in. I was told by BCN if I couldn't do the exercise to leave that particular one out and do the other ones xxx
I hope all goes well with your LN removal. I know exactly how you feel with the worry and stress it causes. I hope you are feeling okay after your mastectomy.
Its driving me mad too, having always done everything for myself and now having to rely on others to help with even things like getting dressed it’s so very frustrating. But as you say, hopefully things will improve in time with the exercises and with a lot of patience! I just have to keep thinking it’s been done to save my life and stay positive. Thank you for replying xxx
I think it's one of the worst aspects. I sat for a long long time just looking at the compression bra - not something I wanted to get familiar with, having delighted in sexy lingerie in the past. I was stuck in my jumper for days, just because I couldn't get it off due to arm weakness and didn't want to ask my husband for his help (though I'm sure he would have helped. I didn't want to hurt any wounds by mistake). I did get to grips with how to put the bra on from scratch, but it was such a struggle to get it on, and now love it however. I never expected to feel so weak, though I can't say I wasn't warned.
I only echo what’s already been said, I had mastectomy 3weeks ago and it’s driving me crazy everything taking twice as long to do….that’s when I can be bothered to do anything anyway….feel like I’m dragging myself around…..husband keeps telling me not to be so hard on myself after surgery and major shock of bc diagnosis, but I suppose it’s only human nature to want ‘normality’ back.
Best wishes to all xx
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