I had a right mastectomy just Iver 2 years ago, then 8 chemotherapy and 15 radiotherapy. I have just found a lump in my collarbone and it's back! I've had a CT scan and I'm awaiting the results to see if it is elsewhere. I have ER+ HER2 negative cancer. I'm absolutely spiralling that it's gone everywhere and I'm going to die. I'm currently on letrozole and abemaciclib which I've been told to continue taking . Are there any good stories of people surviving this? I'm afraid to ask!!
Hi, so sorry to hear you find yourself in this position, that must be really tough. I haven’t had this experience myself but I noticed you haven’t had any replies yet so I just wanted to say hello and let you know that someone is out here thinking of you. Best wishes
Hello TeddyTomTom,
I'm so sorry you find yourself in this scary place.
I didn't have exactly the same as you as I had a triple positive cancer, but I did find myself with a local recurrence before my treatment had been completed 2 years ago. I had had a lumpectomy and chemotherapy treatment with 5 sessions of radiotherapy and was still going through the targeted treatment and so was pretty devastated to have it back again so soon.
I have since had a mastectomy and a change of hormone treatment and there was no further evidence of disease following various scans and xrays prior to the mastectomy. I don't have any follow up, just have to go to the GP if I have any worrying symptoms.
I hope that all your scan results come back in the clear and that your treatments go smoothly for you.
Take care and sending love and hugs
Thank you. I'm am so upset right now. I have lots of things to do and work to get on with but don't want to do anything. I'm so sad. Thanks for replying
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