Letrozole

Hi Honey1810

Ask your GP for an antibiotic. I had this loads when having chemo and also a couple of times since moving on to Letrozole and now exemestane. I also have urinary urgency and I have been given Mirabegron 50mg which doesn't irradicate it but which helps a lot. I have on 4 occasions lost control of my bladder when out walking, trust me not nice. Ask for something. I have found my GP very supportive and helpful. Mirabegron is expensive so there is some reluctance but I have found support when I have asked. So far not much to help the increase in my osteoarthritis or the 11 kilos I have put on (although I have been referred to a weight control group) Anyone with solutions for the osteoarthritis/aching joints and weight gain do please speak up. 

Good luck x

Try taking a d-mannose supplement. I used to get regular mild UTIs and d-mannose stopped them, I stopped taking it for a few years and the UTIs came back and I needed antibiotics. I started taking it again a year or 2 ago and this time haven't stopped and no more UTIs, even throughout chemo and now being post-menopausal on zoladex and exemestane. I did check with oncologist that it was fine to take.

I take a maintenance dose but during a UTI, you can take significantly higher doses with no side effects and it can stop a UTI without antibiotics, which is what I have managed in the past too.

Endless antibiotics are not good for your whole system, so if you're going to be prone to UTIs now, then d-mannose should help prevent them in the first place.

Thank You so much for the advice X️

Thank you  so much for the advice X️

Hi Rozalia

Slightly off-topic here but, regarding you mentioning you are taking Mirabegron 50mgs. 

I, too, am on Mirabegron 50 mgs, for irritible bladder, but I also had Trospium 60 mgs (Regurin XL) added, by the consultant at the hospital, and the combination works incredibly well   I have tried only the Trospium alone but ran into slight issues again so now stick to the combination.  To be recommended, in my case, so might be worth mentioning to GP or Consultant  Obviously, only in my opinion ;)  I'm not a doctor!  LOL

Good luck

Hi Chocdrop.                                                           Thank you so much. I will definitely ask. I am also interested to read about d-mannose which I have never heard of and am wondering if this might help as well.

Great to get advice.

Thanks xx

Hi,

I found using a vaginal lubricant and Sebamed intimate wash I no longer get any of the urine symptoms.( also on Letrozole) 

There is lots of info on d-mannose if you search for it. I have found it to work extremely well, better than antibiotics for keeping infections away. Of course, sometimes you have to take antibiotics if the infection is bad, but whenever I have, I just get another UTI a few weeks or months later. With the regular dose of d-mannose, they stay away and you have a healthy bladder.

I take the powder now, it is cheaper and I found the fillers they put in the pills weren't that good on my tummy of you have to take a lot for a few days. The powders are pure d-mannose.

Good luck with it, UTIs are truly awful. 

Hi Breatthebreast.

Many thanks, am going to try this x