**APRIL & MAY 2021 BREAST CANCER CHEMO**

Hi Anne, I also got a mouth wash on prescription for dry mouth, BioXtra Ultimate Dry Mouth Wash.

Hope the aches and pains ease soon xx

Hey

diamond girl I have the same problem with dry mouth. Nothing I do seems to work. I find now the best thing for me is to try and ensure the dry mouth doesn’t lead to sores like it has done in the past by putting lots of vasaline type products on my lips. It’s very frustrating. 

I wondered how often you guys are meeting with your oncologist? I’ve seen mine once since starting 3 weekly cycle of EC back in feb. This was after my 1st cycle and I’m in for my 4th next week. Does this sound normal? Thanks x 

Hi! I saw a consultant today for the first time since starting treatment on March 3rd. I requested a face to face to discuss the switch to Docetaxel on cycle 4. I am going for my third FEC cycle tomorrow. My trust seems to be doing reviews by telephone unless you specifically request a face to face which I did...

I haven't actually seen my oncologist since I agreed to the chemo....

I would ask about that BioXtra mouth wash, it has been helping me

Brill thanks. Maybe it’s normal then. I guess really I don’t have much to discuss with him until the next stage in my treatment plan. 

I will take a look at that mouth wash. Thanks x

I’ve only seen my oncologist once and it’s unlikely I’ll see / hear from her again until the end of my chemo. It’s difficult as everyone seems to have much different levels of support and contact. I’ve still never had an official diagnosis letter and I don’t know how to contact her, even if I want to.

My chemo team have been amazing though. I hope your mouth doesn’t get too much worse.

Ruby xx

Hi LHM. I have a face to face this week as I have now finished my EC and supposed to be moving on to Paclitaxel but need to fully understand SE’s and regime as have had such a rotten time in EC.  Glad that pause is done. X   Gwennie

I haven’t seen my oncologist since my first Chemo and have now got an appointment to see after it’s over on the 25th June. I’ve had one phone call after my 3rd cycle started but other than that I have support of the Chemo nurses which has been invaluable! X

Take care on your journey 

Janine x

Hi Hill2019,

I’ve been using Zendium saliva gel at night after I’ve had my chemo. Seems to help.

Both my oncologist and surgeon have clinics at my local hospital. I’ve been seeing my Oncologist more or less 3 weekly, although she’s on holiday now, so will be 4 weekly this time. Seeing my surgeon next month although surgery is not until July. In comparison to others on here I seem to be lucky in that respect.

Bluebell xx

Hi Gwennie,

Sorry to hear you've had a tough time on EC!  I'm due my third FEC tomorrow. I had requested a face to face to discuss the change to Docetaxel for 4-6 as it scares me even more. I had hoped the appointment would be with my original oncologist but it was with someone I had never met before who seemed to think I was there about a rash!

Just came away feeling that I should expect to feel worse on Docetaxel. I do wonder why they don't start you on it rather than hit you with it when your system has already taken a bit of a battering...I'm sure there must be some science behind it 

Hope the next few rounds are easier on you xx

Lynne

Hi Anne Diamondgirl my aches didn’t completely go till day 11/12 this 1st cycle on Docetaxel. Manageable with pain relief, took 2 Naproxen a day and topped up with paracetamol if necessary, only needed 2 paracetamol so far on day 13 today. Hope it eases off for you soon. My taste and appetite are better since yesterday too, not perfect but better! 
I just painted my nails dark on Sunday as the weather is improving and it’s UV light the dark polish is supposed to help with. I’ve been using Polybalm on toes and fingernails since I started chemo and they are in really good condition right now so will keep using it and a ton of hand cream. Problems with taxanes can occur months after chemo ends due to the nail growth cycle, some ladies on here said they lost nails or had other problems months after chemo finished. 

BCN gave me Caphosyl for dry mouth and I had Biotene mouthwash and toothpaste. I use Xylimelts at night which help me to sleep better. I wear a gum shield for teeth grinding and found I was waking several times with my tongue stuck to it, it’s been fine since I started using them. 

Denise x