Hello everyone,
I'm Steph from the Community team, I hope you don't mind me posting here.
We've been asked to create a new thread for chemo discussions this April, as the existing threads were getting a little long.
Please do let us know if you have any other threads you think would be useful to link here.
Hi Anne,
Glad everything went smoothly for you. Hope you have minimal SE.
I’m taking my last injection tonight . Taking them at night works best for me as they make me (more) tired.
Best wishes to everyone who has had their treatment recently.
Bluebell xx
My last injection was last night. I take them at night too. Because they make my bones ache & the pain meds make me sleep.
I thought my mouth was starting to feel better then this morning I woke up with thrush. So I got some nystatin. I talked to BCN about my heartburn she said it might be from the steroids. She said next time take it with food & the steroids are rough on our stomach. My face rash is starting hopefully I can keep it at bay this time. My kids came home on Wednesday and I missed them so much I cried when we hugged. It was so lonesome without them.
Did anybody else get photos of your chemo/infusion days? Like 1st chemo and 1 finger up. 2nd chemo 2 fingers. I was looking at my photos & I miss my eyebrows.
I hope everyone has a minimal or SE-free weekend ladies.
Sarah
Hi bluebell
i was going to do it in the morning mainly to get it over with but thanks for the info I will do them at night and see if it makes me tired and hopefully get a sleep. Hope your doing well with minimum SE
That’s a great bit of info regarding the GCSF Sarah. I start mine on Sunday so will definitely try taking them at night! Gwennie
Same as and Bluebell I found taking injections later at night with pain meds helped as I managed to sleep through worst of pains.
I keep a banana beside my bed for steroid days, take them at 6.30/7am with banana, omeprazole with small brekkie and 2nd lot of steroids about 12/1pm with a snack. This was a game changer for me as helped hugely with sleep, I need double Omeprazole morning and night to help with gastritis caused by steroids.
I’m on day 10 and feeling more like myself now injections finished, they definitely made my joint pains worse on top of Docetaxel pains so I’m glad I had pain meds to take till that eased. Actually think this was easier than EC from a psychological viewpoint. As this was #4 I expected to feel tired etc so looking forward to these next few days/week when I get some energy back
enjoy having your kids back with you! Wishing you all as good a weekend as possible, be kind to yourself, enjoy the small special moments and I really hope all SE are minimal.
Denise x
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
Hi Sarah,
That’s great that your kids are home. Must be great to see them. I’m keeping myself semi shielded for the first week (until I finish my injections) and it can be lonely. Went for a picnic to the park with my daughter yesterday though.
My face has been red and blotchy for a few days. Is that the same as yours? It’s not irritating but doesn’t look great. Do you know if it will just go away?
Hope your mouth gets better soon.
Bluebell xx
I’m really flushed and red after my first injection yesterday, but I do tend to find it settles a bit as I go on. They make my teeth and jawbone really ache later on though.
Hope you all manage to enjoy the weekend and have some sunshine.
Ruby xx
Hi Diamondgirl,
It’s probably about an hour and a half after taking them that the tiredness kicks in for me. I take some co-codemol (I’ve only taken it at night) then I’m off. Had a great sleep last night.
Hope you’re OK today.
Bluebell xx
Morning Ruby,
Hope you’re feeling OK. And your constipation meds are working!
I don’t get red or flushed. My jaw feels numb but I just thought that was from the chemo. Do you think it’s the injection? Yeh, might be!
I think the weather is going to change so better make the most of it.
Bluebell xx
Morning all.
Glad the constipation medications are working Bluebell before this no one would have thought that openning bowels could be something to get excited about. I found that the meds were the only thing that worked. Also interested in the jaw problem as i also had that , although i have a tendency to grind my teeth and thought it was that. Never linked it in with this but deffinately more aches than usual in this area. Lije others i have a flushed itchy face which i suspect is due to the steriods i was administered with the Pacitaxel. As i have now finished chemo looking at what next ref skin care. I have found it has made my face really dry. Does anyone know of any good creams that really hydrates the face.?
Oh well last injection today just about to try and muster up the energy to do it. Sounds a good idea doing it at night but like you diamondgirl just want to get it over and done with.
Have a good day everyone at least the sun is shinning xx
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