Docetoyel and it’s side effects

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 hHi Everyone,

  • l have breast cancer and on the FEC treatment, had 3 chemotherapy and now on the Docetoyel  treatments had 3 - one more to go, for the last two half weeks  l have had constant left hip - buttock- leg pain, l am taking ibuprofen and paracetamo , l had a MRI scan last Friday not heard any thing yet,  l have gone online to ask more about this Docetoyel drug and it’s side effects , from what l have read it  does course bad muscle pain in some people, l also have other side effects my eyes are be coming more blurry  hope note made to many spelling  mistakes, have eye drops but don’t seem to help much,  my hands are very sensitive and my poor feet feel like walking on sponges,  yesterday l got an ache at top front of my right leg just below groin  , all the pain has been in my left side - today can hardly put any weight on my right leg , it’s only after l had my first pain killers that l am able to move about  Snail Mode , all the pain l had on my left side is now an ache - the pain on my right leg has taken over,  l am worried what 3 lots of that Docetoyel treatments is doing to my body, l know it’s used to hopefully kill the cancer and my lump in my breast has be come smaller, walking for me and for a lot of people helps your whole body and mind going into the next treatment , l wonder if any ladies have gone through this treatment  where it’s coursed bad muscle pains , and how long it took to recover-  l still have my results to come back from the MRI scan  , l just wonder if that Docetoyel  drug  could be coursing inflammation in my body , and will that scan show it,  really l don’t have any idea what’s going on - that’s the problem normally l would go for a walk  , now it’s snail crawl just up the road and back, l am trying to do this 3 times a day if l can,  l have one more treatment to go - all being well?,   .
  • l hope any ladies just starting the FEC treatment  (please don’t worry)  not all of us will have same side effects -  after my firth treatment things got worse for me, but hopefully it won’t  for you,  my very best wishes  to you all.
  • Heavy multiplication xHeavy multiplication x
  • Hi

    sorry no one has been able to answer your questions . I was on purely Docetaxel . I was due 6 but only tolerated 5. For the first week I was ok , middle week was different every time ! I don’t remember severe muscle pain , my problem was peripheral neuropathy in hands , legs and feet.. Also constipation, again in the middle week. I generally felt poorly. The reason for not getting my 6th was the neuropathy.

    You just need to adjust your day , if pain killers help then I would have a flask and something to eat beside my bed , when you wake up have something to eat and drink then take your pain killers . It’s very very important to drink plenty water/ diluted juice . On the days following your chemo try your best to drink 2 litres , I tried 3 ! But it’s little and often. To this day  I drink a pint of water with each meal . Before cancer I got really bad leg cramps and sometime that is due to lack of fluids . I don’t get cramp nearly as often now and when I do I can relate it to not drinking enough . 

    You need to be gentle on yourself and do not push things . Your precious, so be good to yourself. You’ll get your strength back soon. We are all different . 

    i did have hip pain after my treatment finished but after an X-ray it was confirmed as muscle pain and physio exercises and I paid to see a chiropractor a couple of times - all well now . 

    I finished treatment in August 2018 and I’m well and happy . 

    Good luck with the rest of your treatment .

    take care 

    love Ruby Rose Rose 

    • My face looks better when I smile - so smile it is ! 
  • Hi Ruby Rose,

    Thanks for your reply,  l still haven’t heard  about results from MRI scan. - my consultant doctor from oncology is phoning me next week like they do before my next chemo treatment, do you mind me asking you what  Peripheral Neuropathy feels like, is it like constant acheing in your hands legs feet,  thanks for saying about water- l do drink more water since starting chemo treatments - you are right water helps the body in so many ways, when l speak to doctor next week l may ask for a reduced Docetaxel last treatment - if l am still getting pain around hips etc- and depends on the MRI scan results, it’s always helps to hear from other ladies who have gone through similar treatments, you finished your treatment 2018- and Great to hear your Well and Happy- that gives me great encouragement for the future, .

    Very Best Wishes , Heavy multiplication xHeavy multiplication x️  Springat Last-  Star

  • Hi 

    Peripheral Neuropathy- in my case it was like a numbness - they ask if you can fasten buttons - I still could but not so easy . The tops of my fingers were numb . My legs were the major problem , I had no feeling up to my knees and my husband had to help me up the stairs. I still don’t have total feeling in my toes but I can cut my toe nails now where as for over a year I had to get a professional to look after my feet . I still get weird feet ! Like I feel I have sand I my shoes but I don’t . My fingers have improved , don’t know how long I could hold a pen and write but I took early retirement , so it’s not a problem and I am knitting again - see my profile photo - so proud ! 
    When I completed treatment I started Aqua aerobics, which was great fun and helped with my hands , feet and general well-being .

    if you read my profile you will see my journey. 

    do speak to your team re any worries . I was disappointed to miss one chemo but I was assured I would be fine . Peripheral neuropathy isn’t to be trivialised as it can be permanent. It took me a few months to be confident to walk 2-3 miles on my own .

    Chemo did effect my eyes and I got them checked more often and they did come back to what they were before . I found Viscotears - a gel - excellent for keeping my eyes moist - although our eyes water , the pharmacist said they aren’t quality tears due to the chemo , so I used this gel and still do as I seem to be prone to dry eyes

    ( even though they water) I think I had this before I was diagnosed . You don’t think you have dry eyes if they are always wet ! 

    I’ll stop rabbling on ! But please ask anything I don’t mind . 

    Take care 

    Ruby Rose Rose 

    • My face looks better when I smile - so smile it is !