Tamoxifen

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Hello to all,

I'm not sure what I'm hoping for with this. Maybe for you just to tell me I'm not going mad!! 

I started taking Tamoxifen 7 days ago. About 4 days into taking the medication I started feeling all achy (like flu) headaches and fatigue. I'm in bed by 7.30/8pm which is before my 7 year old daughter. 

I've been feeling like I can't be bothered and having to really push myself. Even walking the dog feels like a choir. 

The Doctor did tell me I would have some side effects. I just don't feel like myself. 

  • Hi

    Sorry you are feeling like that - I’m no medical expert but your symptoms don’t sound like the normal ones for Tamoxifen , side effects are more like menopause symptoms than flu like - I would contact your GP or call 111 in case it is something else (covid comes to mind) They should be able to put your mind at rest.

    Jo x

  • FormerMember
    FormerMember

    hey, I started Tomixifen 5 days ago and have the same feelings.  Being a really active person I’ve struggled since surgery to lift my energy, which to be fair I know everyone will say I’m still recovering.  I have a low mood, no energy, I have to drag myself to do anything! I try to walk and my joints ache and I’m shattered by 8pm then wake up frequently.  Hot flushes are frequent through the day, i don’t have night sweats and they just last a few mins, like my head is boiling! I take Tamoxifen in the morning.  I have headaches and tiredness just as you describe.  I’m hoping post radiotherapy, being the last treatment, energy levels will start to return.  Hoping tamoxifen will just be an every day part of life and you settle in to the effects it gives.  I expect your body is also reacting like mine to the stress of what you have been going through too.  Be kind to yourself it may take a while and I’m positive life will return as we know it again!  I’m hopeful and for now trying not to beat myself up about feeling not the same.  Allowing the time, however frustrating and I feel your pain! Fingers crossed x 

  • Hello, yep, I’m now 4 days in on tamoxifen and feel absolutely dreadful. What brand are you on! Mine is genesis and I seem to have everyone of the side effects. Have things settled down for you over this last few days? 

  • Hello Cyprusfav,

    I'm sorry your having the side effects that I reported. I have to say my symptoms have reduced alot. The headaches and flu like symptoms have gone and I'm not as tired. 

    Hope this helps 

  • Oh thankyou for that, it gives me a light at the end of the tunnel.

    what brand are you on?

  • DearTIM1K9.. how are you feeling. Have the side effects settled down at all? 

    What brand are you on? 

  • I started taking Tillomed and my new packet is Wockhardt. 

  • That seems quite popular, how are finding it! 

  • FormerMember
    FormerMember in reply to FormerMember

    I’m due to start taking tamoxifen.  I’m sacred and hopeful reading your post. 
    thankyou.  For keeping it real 

  • Hello. My side effects are now all completely manageable so try not too worry. If I can help just message me x