***OESTROGEN-REDUCING MEDICATIONS***

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I felt it would be a good idea to have a thread for this which people can use to ask questions, especially about side effects.  

  • FormerMember
    FormerMember in reply to FormerMember

    Hi all, 

    Nearly three months into Tamoxifen and I’ve hit the pain. Sore knees, hips and lower back. By 7pm I’m so sore. Does this settle with time or should I be asking about it? How long does it take for all the side effects to show up!? 

    Thanks, Ruby xx

  • Hi Red Ruby,I have been on Tamoxifen for 4mths now,and nothing to report really,I am on 20mg per day,have gained weight but not sure if this was due to Xmas,but I can,t say for so what is to blame for it.I spoke to oncology the other day,they rand to see if all was well after radio and also asked about how I was doing with the Tamoxifen,think I would give them a call to see if your soreness is normal.x

  • Hi. Try changing when u take it. I now take it before bed as I got light headedness with it. This has helped

  • Yes I was told bedtime was probably best time to take it,for hot flushes too.

  • I was on tamoxifen for 6 years and now anastrozole for 2.  I always take them at bedtime so worst effects are during night. Funny but I can go to my bed freezing having taken the tabs and then before long I’m boiling hot.

  • Yep,sounds like hot flush,I didn't have them until Tamoxifen came into my life,I was done with menopause years ago,these hormone tablets are know to give hot flushes,I seem to just have one every night.

  • Hi all, I am looking for advice on hot flush management. I started on tamoxifen just over one month ago. I have been started on 5 mg of folic acid on advice from oncologist, did anybody else try this? Just started my radiotherapy yesterday so will also try and do acupuncture but will probably wait till I’m finished the radio. Doing all the other things I’ve read about like, alcohol cut down, caffeine layers, fans etc but not really having any impact yet. So horrible, just glad it’s so cold outside at the moment as that really does help cool me off not looking forward to hot summers. I realise this can be very individual but willing to try things that work for others!

  • Hi. Just coming up to 3 weeks on letrozole. The side effects so far are few just the odd hot flush and more recently feeling very cold, especially my hands and feet.

    The only bad thing is tiredness. I dont mean just feeling occasionally a bit tired but exhausted and sleeping for hours.

    My gp has requested blood tests to be safe but I think it's the letrozole.

    Has anyone else suffered such exhaustion and did it improve over time.

  • Hi CeltGirl,am wondering why you have been given folic acid,so no haven’t tried this.Yes it does help when the weather cold,I never have my radiator on in the bedroom,for me my bedding is layered,cotton sheet,summer weight quilt and a throw to pull on when needed.When my flushes were in full swing I had a fan at the end of my bed,bowl of iced water on the side table with flannel soaking in it,then put the flannel on my chest,neck etc,also found those aerosol sprays were quick and easy to use.When I was at my worst,I was living in a hot country so it was really bad,fortunately had a swimming pool so used that at strange hrs of the night lol,Now into my 60s flushes are minimal to be honest wasn,t having any until I was put on Tamoxifen,but coping with just 1/2 flushes a night.I tried the lots of other supplements to no avail,but did stick with soy milk.

  • Hi Daiquri,I have read older posts in the past about ladies feeling extremely tiered on this medication,some of them have said it does start t,o settle at roughly the 3month point,maybe look back at older posts,or phone your B/C nurse.Maybe they could change the dose is it turns out not to be a common symptom.