Help - Petrified

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Diagnosed with HER2+ breast cancer in May, had lumpectomy in July and Sentinel node biopsy, waited 2 weeks for the results and then my surgeon forgot to call me on the allocated day, I finally caught up with him and he apologised saying he didn't have my notes with him but told me he was sure they got all the margins and that the node was fine so would just progress onto chemo and then radiotherapy - more as a belts and braces operation due to it being HER2+.  He did phone me the next day and confirm what he had told me.

In August i noticed a lump where the lumpectomy had taken place and assumed it to be a seroma, called the breast care nurses who without seeing me advised that this is definitely what it would be, I've had no post op follow up with anyone - only the oncologist and nurses at the local cancer centre who have never examined the breast, called the original breast care nurses a few times only to be told again and again a seroma.

Third chemo session last week and asked the onco nurse to have a look she has now said it doesn't seem like a seroma and referred me  back to surgeon, due to see him next week now but I am so worried, cant sleep eat or think straight - I know I'm overthinking but what else could it be if not another cancerous lump - either not gotten the first time or something, has anyone else experienced anything like this??

  • Hi kiradun and welcome to the forum  I am so very sorry to hear how worried that you are. Mind you with all these people doing virtual and phone consults and nobody having  a look it is little wonder that you are worried. Can you get an a appointment with the GP as they could examine this and maybe put your mind at rest. Don't take no for an answer you need  someone to look at this and tell you what this is.

    It could be a seroma that has developed and not been able to drain away that can happen sometimes and may need drained in a  clinic setting. It could also be scar tissue developing around the area of the surgery and this is not uncommon either.

    However, you need some re-assurance and someone to look at this and tell you what it is. Its ok for you to be overthinking things you will be scared and you wouldn't be human if your weren't but we will be here for you and support you in any way that we can.xxx

    Sending some hugs your way for now.xxx   

    • Hi
    • I have an appointment next week so am praying that it is just one of the things you have mentioned , thanks fir your kind words , keeping my fingers crossed xx
    Stay strong 
    Kira