Breast Cancer & Crohns Diease

HI Keira17 I must assume that this is pretty rare, but just in case there's anyone on here at the moment who has Crohns, then I'm bumping your post back to page 1.  

Kindest wishes,

Lesley

Hi I was diagnosed with secondary breast cancer a year ago and I’ve had crohns disease for around 22 years I haven’t had a problem with the Crohn’s around the cancer only when I needed to try a pain patch on my arm can’t remember the name but I immediately got diarrhoea when I started the patch and when I finish using the patch because of this the diarrhoea stopped.

I take immuno therapy tablets and letrozole for the cancer

I had radiotherapy when I had breast cancer in 2016 and then more radiotherapy in September last year when the cancer came back

sending big hugs x

Thank you for your reply , started Paclitaxel today so 3 left to go. Hopefully my Crohns will settle down with this treatment

sending big hugs x

Hi Keira17

That's just what you need isn't it!  I have crohns but quite mildly and like Debs mine was dormant before and , thankfully, throughout treatment (and still is!).  I do hope you've discussed any challenges in this respect with your support team/BCN.

Hope the paclitaxel helps calm it as you had hoped and good luck with this chemo drug.

Sam

Hi Keira17 

Hope you are felling a little better after starting the Paclitaxel.

xx

That's the best thing to do - stay positive and laugh :) xx

Hello!

i was diagnosed with a DCIS a month ago and had a WLE last week, with radiotherapy expected in November. I also have Ulcerative Colitis. We have an excellent IBD team at my local hospital and I told them when I got my diagnosis and asked if there was anything I should do/be aware of. They said to just keep taking the meds as there was nothing they could do to prevent a flare (and I do tend to flare when stressed) but that they would take things carefully with me if my UC did decline.

So no actual info there, sorry! But a hand-hold because I know how crap it is. Hoping your Crohns settles - have they  changed or upped your meds at all?

Just over a week since starting Parclitaxel and struggling with joint and muscle pain. Took paracetamol but didn’t touch the pain so now on paracetamol and codine which of course upset my Crohns. Saw the consultant today and on plan B reducing dose of paclitaxel and different painkiller so hopefully side effects will reduce and my Crohns will be happier

Hi I have crohns and I was on immune suppressant  Ustekinumab, I also had surgery 3 years ago so now have a stoma, they have now stopped it so I can start chemotherapy on the 5th November, I have the same cancer as you but my HER2 is positive, I am worried my crohns will flare up while having the chemotherapy, the specialist has said they can tweak the chemotherapy if needed, I hope you have no flare ups and only have to deal with the chemotherapy side affects x

I had my latest paclitaxel treatment last Tuesday, did get painful joints on Thursday evening, Friday but new pain killers are taking the edge off the pain. My consultant suggested I take my steroids (Budesonide) for a couple of weeks to see if that would help my Crohns but after a discussion decided to stay on the steroids until chemo is finished so Crohns is more manageable and only 2 more treatments then 3 week period till I can restart azathioprine and Imraldi injections