Prosthesis fittings

Hi Sam, not sure if my hospital is up and running yet but I’ve recently bought another softie from Amoena, it’s exactly the same as the one the hospital gave me.

www.amoena.com/.../

Yorkshire_defectorHi Sam. hope you're keeping well. Yes, I went for my fitting and got my prosthesis on 5 June so my hospital must have been back on track pretty quick. We just have 1 lady who has her own separate fitting room with all the boob boxes (!) so there was no problem with me going in to see her!!!

Go on, yes I think you need to make more noise!!  Good luck

Hi Bramble22 and West End Girl

Thanks for replies, when I have more energy next week (feel knackered this weekend) will take up the case! Other than tiredness all good here, and have a draft date for DIEP early Dec...before this will have bone & CT scan to check nothing amiss before body is rearranged!  Hope all good with you both.

Sam

Hi Sam, Bramble 22, West End Girl and Northerner too

Nice to see you all having a conversation again. And good you are all doing well. 
I am doing fine. Just the timing of our treatment meant that just as we were wanting to get back to normal living this Covid hit so I have found it hard over the summer with shielding in place. And now as I am beginning to venture out to towns and restaurants things are being closed again. I feel at times the world has changed. Saying that just so relieved I feel well enough to consider normal living though and thankful I had my treatment completed in spite of Covid. 
I only received my silicone prosthesis mid August. I was so relieved to get one fitted properly. It is so much better and it has given me more confidence. My op was mid March so had the softie a long time. It was ok but it didn’t stay too still. When waiting for NHS one I sent to Nicola Jane for a tri leisure form. The girl on the phone was very helpful and in the end I tried 3 before I found one I was happy with. However it wasn’t really comfortable but did the turn until I got the silicone one. So hope Sam and Bramble you get one soon. I kept contacting the BC nurse. Of course I still attend the oncology clinic every three weeks for Herceptin  so I still see them all. Only 2 more treatments to go !!! Still waiting for appointment for my first mammogram though. 
Often think about you all so look after yourselves.

Love Jojodot X

Hello Jojodot so lovely to hear from you! Glad to hear you are doing well!! I agree, this Covid thing is starting to grate a bit. I’ve been to one restaurant in all this time, just for lunch, just don’t feel too comfortable with it yet.

Can you tell me, were you scheduled to have reconstruction at the same time as your op? I wondered if that’s why I’ve not been offered a prosthesis yet, they are planning a delayed reconstruction? I’m now not sure I want the reconstruction. I was due to have DIEP but due to Covid it was cancelled. We have just been told our first grandchild is on the way so don’t want to be unfit when he/she arrives!

Think I may give my BCN a ring although she has been MIA since op mid March!!

Keep in touch, I’ve put my email address in a PM! x

Hi Bramble,

Lovely news about baby on the way. Grand parenting is wonderful. 
Re prosthesis - it never was the plan for me to have reconstruction. I felt I had had enough surgery. Before I got my NHS prosthesis I did wonder if I had made the right decision !! Sometimes I still wonder. I was told you get a replacement every two years and now I have been sent a lighter one for swimming and exercise without requesting it so it’s all very good. They told me they do a free pocketing service for any swimwear, bras etc. Once you get to the clinic it’s ok. It’s the waiting to get an appointment. Have you any word of a mammogram?? Hopefully we can meet up once this virus settles. 
Jojodot X

Nothing on the mammogram yet Jojodot, I have had next to no contact with anyone except during radiotherapy. My first appointment with my Oncologist since op is mid October!! Actually that’s wrong, saw my surgeon (not the one who did the op...that’s another story) as I had an infection and also met with my oncologist’s registrar pre radiotherapy.Assuming things would be different if it wasn’t for Covid...but who knows! I would have thought you would have got another scan after treatment but seems that’s not the case.

Yes would be lovely to meet after the virus is gone...hopefully that’s soon. x

Hi everyone re mammograms I've had my first annual .All clear thank goodness  

I was told it's  annual to surgery advised by Bcn to ring . Which I did to make sure I was on list . Only problem I had was getting result as they're sent to surgeon . 

I was just a pest and rang until results were given in writing ./still find it strange that surgery site not checked .

hope you all get yours soon 

margaret x

Hi Jojodotlovely to hear from you, glad you are well. I know what you mean about how we counted down to getting our lives back to normal only to be thwarted by this pesky virus!!! I've not been strictly shielding, as I was told immunotherapy doesn't lower the immune system like chemo does, however, I have still been very careful about going anywhere because if I did show any Covid symptoms, the nurses wouldn't come to do my treatments. Like you, I just have 2 Herceptin/Perjeta to go. I'm lucky that I have community nurses who come to my house for the treatments, I was actually offered this before all the lockdown chaos....it's a service my hospital offer and are expanding. I've been back at work for a few months now.....but at my dining room table so it's all very weird. No sign of us going back to the office. I guess we have waited this long for some normality to return so we'll just have to be patient a little while longer.

Interesting you say about a free pocketing service for swimwear, I think I will ask about that as I have a couple of costumes which I was thinking of taking somewhere to ask if they could do that.

Take care xx

Jojodot

Good to hear from you and that you're hurtling your way to end of herceptin. Lucky you getting prosthesis sorted, seems like my hospital may be the last to get back to the fittings so I will be chivvying them along somewhat later in the week...

Question for my 6 month follow up is how long I also need to attend chemo clinic to get my monthly zolodex shot, you'd have thought at some point my ovaries would give up the will to fight, admit defeat and shrivel...

Northerner

Well done on the all clear, me too though I had to assume this was the case for 6 weeks until chatting to BCN on another matter and checked my assumption...oh yeah, we were going to call you about this...impressive!!

Sam