New, saying hello, feeling scared

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Hi there, I've just received my diagnosis a week ago. It's been such a long long week. I'm 44 with two boys, 7 and 4. I've had fibroadenomas and generally dense lumpy boobs all my adult life, which made checking them tricky but also meant I regularly referred myself to further investigations, and occasionally biopsies. All would come back normal until this last one. 

Mine was described as an indeterminate lump and everyone thought it's most likely benign, but via the 8 biopsies it turned out to be ER 7, PR 4 and HER2 negative (or low, they didn't specify). I was told grade 2, and they didn't pick up anything in the lymph modes on the ultrasound. The lump is thought to be about 25cm (although the mammogram said something about 35-40cm distribution of micro calcifications? Also my letter said 20% distribution or something I didn't understand. I have my MRI next week. 

I've been holding it together as much as I can, and letting my friends and colleagues know. I've just had to have a big ol' handover of my workstreams at work Sob. My kids don't know yet as my partner wants to wait until we know more about the treatment ahead. It's hard acting normal in front of them. 

I suppose the reasons I decided to post are that - since the diagnosis my body is experiencing all sorts of concerning aches and pains in my shoulder, shoulder blade and in my boob as well, and occasional head pangs. Also that I feel so incredibly isolated and struggling to find other under 50s to talk to. A lot of stories I read have mamas with adult children and I get upset thinking mine are still so young. Perhaps connecting here might help me feel less alone...

Ps I've signed up for Someone Like Me and been to my local Macmillan horizon centre etc. 

  • Hi VeraZzz

    Welcome to the forum, I'm Daisy53 one of the Community Champions on this forum.  I'm sorry to hear that you have been diagnosed with breast cancer.  All the aches and pains you are experiencing are probably a result of the stress you are feeling under at the moment.

    It's good that you have signed up for Someone Like Me and that you have been to your local Macmillan horizon centre.  Do you have a breast care nurse yet? If you do give them a ring to ask them about the things you don't understand and they should be able to help you.

    Wishing the best of luck with your MRI next week.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi  

    I’m sorry you have to be here, but welcome!

    I was 46 when I was diagnosed two years ago and it came as a massive shock. I’d been to the breast clinic before years ago so thought the lump I found in my armpit would be checked and I’d be sent home again. However, when I was examined something was found in my other breast which turned out to be cancer. 

    When I was diagnosed I started to get pains in my arm and back and convinced myself it had spread everywhere (it hadn’t). Then when I was recalled from my first mammogram after I had soreness in my ribs and again thought the worst (turned out what they wanted to look at again wasn’t even on that side!). Don’t ignore what you are feeling and mention to your team, but remember our minds can do funny things when we are under stress. x 

  • Thanks Eebee that's reassuring. And really helpful to hear from another under - 50 who's gone through this. How's the journey been for you? 

  • The part between diagnosis and surgery was the worst for me, waiting for various things and delays was really tough but I know now that everyone was doing what they needed to make sure I had the right treatment. However, once I had surgery things have gone as well as I could have hoped for. I had a lumpectomy, five days radiotherapy and tamoxifen for five years. I recovered really well and am fortunate that I don’t have any ongoing issues. I’ve just had the all clear from my two year mammogram and happy and healthy. I know it’s scary, but once you have a treatment plan and know what is happening and when I guarantee you will feel a little better. x