Received initial diagnosis last week and terrified

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Hi! After finding a lump in my armpit I was sent to the hospital for an ultrasound and they took a sample from the lump. I was told at my follow up appointment last week that the cells were cancerous and that I also have a large lump in my breast and sent for a mammogram and biopsy. I’ve had an MRI this week and am waiting for a CT scan.

I’m absolutely terrified and feel like I’ve been given a death sentence. I’m convinced the cancer has spread to other areas and can’t stop thinking the worst. My mum died of breast cancer aged 39 so I guess it’s understandable. I’ve got an 11 year old daughter and I’m devastated that I may not be around for her. I haven’t told anyone about my diagnosis except my partner and my best friend as until I know the full picture I don’t want them to worry like I am but I can’t stop thinking about the impact it’s going to have on my family. I’m trying to keep occupied but it keeps hitting me in waves and I’m not really sleeping as I keep waking up - it’s like my brain wants to constantly wake me up to remind me.

Sorry for the long post - I just don’t know what to do with myself today and can’t stop crying. 

  • Hello Snoopchoc

    First of all, I'm so, so sorry you find yourself in this situation. Don't be too hard on yourself, its only natural that we automatically think the worst, I think its some kind of coping mechanism just in case we get bad news.  Remember, its not always as bad as you think it is going to be.

    Ive just recently had a cancer diagnosis, I'm still going through tests before they come up with a treatment plan.  So, I know exactly what your going through.

    Just like you, I couldn't eat, sleep or stop crying.  Have you spoken to your GP?? I saw mine before I had a diagnosis and he prescribed something to calm me down, help me sleep and give me an appetite.  He was very, very understanding and its definitely helped me.

    The crying is perfectly normal, and it does come in waves.  The first few weeks were the worst for me, but it does slowly become more manageable.

    Its absolutely understandable that you havent told anyone, its your story and I'm sure you'll do that whenever youre ready.  But in the meantime, do you have a number for the nurses on the breastcare team? You could call and speak to them for some reassurance. What about Maggie's, do you have a centre near you? Or, you could call and speak to someone at MacMillan?? There is lots of support out there.

    Its such a frightening time, but please try and stay positive.  I dont know how long ago you lost your mum, but treatment has come so far in the past few years.

    I've had such a lot of support here, so reach out whenever you need to,  theres always someone willing to help.

    I hope you dont have too long to wait before you get a plan in place. Please take care, hang in there!

    Much love

    Joyce x

  • Thank you Joyce and sorry to hear you’re in the same boat. The waiting is awful isn’t it?! 
    I just feel constantly sick thinking about possible outcomes. Maybe I’ll try and see my gp.

    Do you mind me asking, have you told anyone about your diagnosis or are you waiting until you know what your treatment plan is? 

    Thank you for replying. Emma xx

  • Hi Emma,

    You can ask me absolutely anything!

    I've chosen to only tell close family, and I didn't do that until we knew for sure that I was going to need treatment.

    I'm having a second lot of biopsies done tomorrow and I expect to have those results in about 2 weeks.

    Once I have a definite surgery/ treatment plan in place, I'll tell anyone else that needs to know. Its such a difficult discussion to have, so I think i need to be absolutely ready and prepared before I do it.

    Take your time, you'll know when youre ready.

    Sending a big hug

    Joyce x