Accepting treatment or not??

Hi, I can't answer on ribociclib, but hopefully someone else with this experience will spot your post and provide some insight.

I took the 15 sessions of radiotherapy that they offered me and to be honest, this was the easiest of all treatments as I didn't have any fatigue or itching during the sessions.  I'm also on letrozole and tolerate this fairly well though I do make sure I stick to the same brand.

Best wishes in making your decision on your future treatment. 

Thank you.

Good tip on the letrozole brand. I'll remember that and good to hear you have not too many issues with it.

Thanks again and I wish you well

Hi. I’m not sure if you are asking for advice on the 5 sessions instead of 15 radiotherapy sessions or the ribociclib but I’ll provide my advice on both. 

Radiotherapy- there was a recent trial (the fast forward trial I think it was called) and they found that 5 sessions of high dose radiotherapy was was as effective as 15 sessions in a group of women over 5 years. I asked my oncologist about it as I was also prescribed 15 sessions and he said the trial was in over 50’s. I am 42 so for my age group he said the 15 sessions were still recommended. 

Ribociclib- I am currently taking the sister drug Abemaciclib which is pretty much the same. The side effects aren’t great for me but the results in trials are absolutely fantastic and I would recommend taking it. It is a highly effective drug in preventing recurrence and I feel very positive about it. 

Thank you

That's very helpful. You are so young. I am 74 and I think will be asking about the age factor. 

It seems that the the side effects for Ribociclib are more common than the 10% I was told about and again I will ask about age factors.

Keep up the positivity and I wish you well.

I think for your age bracket 5 sessions would be ok. Have a read of the trial and results and you could always refer to it when you speak to your oncologist. 

The ribociclib was probably recommended as you meet the requirements (grade, in lymph nodes) but if the characteristics of your tumour show low recurrence rate then you could probably swerve it as the aim of that drug is to prevent recurrence and kill any hiding cancer cells. 

Can I take you with me 

Thank you