I was diagnosed with Stage 4 breast cancer 7 years ago, it had spread to spine, ribs and pelvis, though not severely. Since then I’ve been taking Letrozole and Palboclib, the latter 75mg, and on a 5-week cycle rather than 4 because my neutrophils never managed to recover with one week off. I have a CT scan now every 6 months, and there’s been no further spread of disease, no sign at all really now apart from some scarring where the bone cells won’t repair. I don’t experience any side-effects apart from getting tired more quickly than I think someone of my age should (I am 73).
For some time I’ve been wondering whether I really need to continue to take Palbo, would Letrozole alone keep it at bay, but whenever I mentioned the idea to an oncologist I was told there had been no trials and I shouldn’t take the risk. However I had an appointment today after latest CT scan (which is all clear as usual) and the oncologist said if I wanted I could go on to Letrozole only with a scan every 3 months. This was a phone appointment, and the next appointment, in 10 weeks time, will be face-to-face so that I can more details before deciding.
I feel generally very favourable to the idea, but would like to hear from anyone who has already gone down this route, or knows about any trials.
