I was diagnosed with a ‘small’ breast cancer (consultant’s words) and had a lumpectomy three weeks ago. It was not expected to be anything other than No Special Type and stage two. The pathology has come back as stage 3, so the original lumpectomy followed by radiotherapy (at the Marsden) diagnosis has now gone down the route of ‘urgent’ MRI and CT scans, which are due to be completed by next Friday. I’m seeing my Oncologist on Monday, as they would like a tumour profiling test done, which is not available via the Jersey Health Service, so my husband and I have agreed to fund it. My husband appears to be in denial as to the diagnosis, but is trying hard to be supportive (which I much appreciate) but my adult daughters appear to have left ‘without a forwarding address’, if you get my meaning. I haven’t bombarded them with information, just given them the facts. I am mystified that I’m not asked for days on end how I am, or if there are any updates in my treatment etc., or if there’s anything they can do. I assume they are also struggling with my diagnosis, but I don’t know how to support them, (along with my husband), and I wondered if anyone had any insights. Sorry for the long post.
Hello. I am so sorry to hear you are going through this. It’s good you have reached out to the online community as there are lots of us on this journey. It might help to speak to one of the breast cancer nurses or cancer support specialists to support you? I have rung through a few times now and there is always someone sympathetic to speak to. Not sure if there are any cancer support centres where you live too as some of them support family and friends too. I know you want to support family but it’s really important for you to look after yourself during this time. Take care.
Hi, firstly let me say that I'm sorry you're now a member of this club which none of us would choose to join. Whatever size, grade or stage we're diagnosed with, it's a massive shock to the system. It's also a shock to those around us, but, and it's a big BUT, it's you who's going through it and you have to kind to YOU! The BCN at a patient information meeting I went to pointed out that as women we are generally the care givers, the problem solvers, the ones putting our own needs on hold, to look after our families/friends/neighbours/Uncle Tom Cobley...and his dog. She went on to say that for now we are the priority. We have to try and put ourselves first for a change. It's hard, but what we're going through is hard and we need to concentrate our energy on looking after US!
Your daughters are probably struggling with your diagnosis and don't know what to do or say for the best - so they're doing nothing. Perhaps they need to be told what would be helpful - even if all you want is to be treated as normal. Hopefully, they'll soon get over their 'Ostrich syndrome' and be supportive in whatever way works best for you. But, in the meantime, there is always this forum, filled with people ready to listen and help you/all of us through the minefield we've been landed in.
Whatever cancer throws your way, we’re right there with you.
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