Struggling with Long term Side effects & issues

Hi Vic86x , you have had a really tough journey. Am so sorry you lost your mum and nan when they were so young. I had other trauma from when I was younger (mum with mental health issues) - everyone thinks you are so resilient but the truth is what choice do we have when these things come along? 
I was diagnosed Oct 24 - I have found cancer difficult to get my head round. Friends think once active treatment is done, you are ok, but truth is there are constant worries, pains, niggles (and worse) that only other survivors understand. So just wanted to say that I totally get what you are saying. 
Not sure what late effects you are still having but I have been getting help at my local hospice with various things - might be worth checking? Or somewhere like Future Dreams (London) or Penny Brohn (Bristol) or a Maggies might have sessions that would help? Both with physical issues and also opps to share how you are feeling. 
Take care x 

Bless you, you have been through the mill and jumped over all the hurdles to cope with the treatment. My journey wasn't as challenging as yours I was hormone positive, chest wall tumor IDC & high grade DCIS. Had WLE, radiotherapy and refused Hormone Blocker but gave up my HRT. Was a tough cookie, like you and accepted my diagnosis, the treatment as well as biopsy, magseed, scan after scan, just got on with it so to speak. Great team around me. Then after Operation, 2 hour recovery then sent me on my way and..... nothing. I was so scared, my incision is under the cup, it looks like a bra wire tattoo. My boob was on absolute fire that night, I was freaked out as I was unaware what to expect. With the hot summer heat and hot flushes I ended up with a skin infection and multiple cysts. After some antibiotics and topical cream my boob swelled, deep big pores developed, it became red and very warm! I went to doctor who referred me back to clinic. I was greeted by a rude, condescending consultant who told me, it is normal. I don't even know what normal is! I am now a few weeks on from said appt, I am in no rush to go back! My boob is still deep pored, red, warm and it throbs like a bitch. I have a nipple that is pure white and peaks like a Mr whippy ice cream. I have tenderness under my armpit and Lymphodema in my arm and breast. I am trying to be what I know is normal for me, jump back into life but the truth is I have become conscientious about how I look. Not because I look bad but because I feel bad, poorly most of the time. It is hard to wear my bras as they fit in the morning but as the day goes on it swells and bulges out. I have a damaged rib too from radiotherapy so I also swell over oneside of rib cage. I am hoping the pain, tenderness will ease over time. Since RT I have been permanently exhausted. Treatment is good but the after effects seem to last forever. I hope you are able to find some comfort that you are not alone. This group is great and supportive and regardless of our journey and what we don't get told. You don't bounce back straight away. I am giving myself the space to heal without any pressure. It don't help with the discomfort but it helps me mentally. Take care xx