So up and down

Sorry to hear about your ups and downs.  You aren't the only one - everyone goes through this a bit.  Try to stay positive, although I understand that fear of spreading while you await treatment is so nerve-wracking. Keep talking to your support network about how you are feeling, practice your "self-care" as much as possible to ensure that you are in the best condition for recovery and ready for the chemo when it comes. 

Thank you Blue Sky Thinking 

I'm pleased to have this forum.  I have to be mega-positive for my family - which is ok sometimes, but difficult at the times I have the downer feelings.  I know everyone has this and I  just have to cope with it. I'm a worrier by nature which doesn't help!!

Thank you for your kind and sensible words

x

Hi. My oncotype was 26 so needed chemo also as over 25 for pre menopausal women it said chemo was of benefit. I was really hoping to avoid it. My friend who had the exact same type had an oncotype score of 6 so she only needed radiotherapy, very bizarre. Can only assume it was because hers was grade 2 and mine was grade 3. 

Please don’t worry about the delays, it will not spread in that time. I was diagnosed in Oct. Had mastectomy in Nov and lymph node biopsy revealed 1 out of 3 affected nodes but I didn’t have axillary node removal until Feb and chemo didn’t start until last month. I said to the oncologist surely I should have been put on hormone blockers straightaway/is it not bad that it’s been so long since the mastectomy/is it suddenly going to become stage 4 etc etc and she was like no shaking her head so please try not to worry about that but I know it’s easy to do so but the reality is they are the experts and know how these things progress etc. 

I would take comfort in the fact that you are having chemo and that will “rinse through” your body so to speak of any stray cells that might be there. 

Ohhh..thank you!  It's made me feel so much better to read this.

I do trust my team.  I know they are experts and very experienced but I also know they must've been concerned about spread as they got me the CT scan and results organised the same day as the second tumour was diagnosed.  Hanging onto that clear result!

It's just such a long wait.  It's good to read your words and know I'm not the only one who has had the long wait time till chemo

Thank you!!

x

I had an MRI and CT scan ordered quite quick after diagnosis also. I don’t think that is anything to read into I think that’s just so they have more info/ know what they are dealing with. I think with me because I was only 40 they had no history on me ie I’d never been for mammograms etc like you do from 50. My friend who had the exact same type as me did not have any MRI and CT scans. She was 67 and they could see her history in going for regular mammograms.  

Hi,

I'm 62:so have had a few mammograms.  Coincidentally, I'd had the notification for my next 3 Yearly test scheduled for the week after I found the first lump.  So the 2WW test came first, but pretty good timing really

I'll just keep hoping that the CT results will still be true by the time my chemotherapy begins and try to stay calm.

Hearing about your experiences has made me feel less panicky.  Thank you so much x