Hello

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Hello i am new to this group.

i had my surgery first Mastectomy 1 week ago and found out just before surgery that It was HER2 positive which means I am awaiting my treatment pathway when it will start for chemotherapy and herceptin injections over a 12 month period.

I.have always been and am a really positive, optimistic strong willed women but finding myself feeling a little isolated and alone with how I am feeling even thoughni have and are very blessed with wonderful network of family and friends supporting and im not an oh woe me feeling sorry for myself person but.feeling quite numb and emotional but not wanting to show or breakdown in front of my nerest and dearest as I have always been the centre strength to and for everyone. Just venting out here in a safe group space.

  • Hi  , welcome to the group, none of us wanted to join it but it’s a great place for support and shared experiences. Glad you’ve found us! Definitely a safe place to vent, ask questions, express yourself in ways that can be difficult with family and friends. Feelings of isolation are so common with a cancer diagnosis, forums like this are so important to connect with others who ‘get it’. Must work for me as here I am still rattling round the site, nearly 7 years since my diagnosis! 
    Sending love and a big virtual hug your way, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hi Bondie,

    You've definitely come to the right place for some great support. and a vent!! I am pretty much one year ahead, I had a mastectomy beginning of June 24 and only found out that I was her2 positive after surgery they thought I just had DCIS/LCIS (non invasive cancer) then after surgery they found the invasive cancer it was hiding behind the non invasive. I had opted for immedate reconstruction as before surgery it was no chemo and no radio so finding out i was her2 positive you can imagine, everything got turned on its head and i felt dreadful it was such a shock. I have 3 children at home so constantly putting on a brave face trying to get through the days waiting to hear about the treatment plan ahead. I am now through chemo, radio and only 2 herceptin left and then I will go onto Neratinib for another year but once you have the plan and dates you feel more in control and hopefully a lot more settled!! If you have any questions please do ask. It will get easier I promise. Big hug. Xxx

  • Thank you for reaching out and you make total sense. I think it's probably a good cry i need as I haven't really at all over the course of the last 3 months from going for my routine mammogram screening to following 6 weeks of biopsies, waiting, to finslal diagnosis end of may to my surgery 20th June and then finding  out I was HER2 positive. I have all my wonderful family. My daughter and my grandchildren who want grandma loves and hugs and I just can't breakdown in front of anyone. X amazing that you arebnearly 7 years down but still coming on the group love your name happy feet x