Worried

Hiya its perfectly normal to worry but worrying isn't going to change anything. Wait till your appointment and they will discuss your treatment plan and they wouldn't keep you waiting till the 19th if they thought it was worse than it actually is. I had triple negative breast cancer in 2018 and I found out I have the BRCA1 faulty gene so I had to have a double masectomy no reconstruction and full lymph node clearance and because I have the BRCA1 gene I had to have my overies and fallopian tubes removed all in the same operation. Had chemo and radiotherapy yes its scary and I'm not sure how I got through it but your body is in control. Just go with what your body is telling you. I still worry incase it comes back but I've also got to live my life so try and keep your mind active. I did the adult colour by numbers when I was poorly and it just takes your mind off thing . Give it a try. Good luck in your treatment x

Hello Dhill , I had a similar diagnosis to you - stage 2 IDC and had to have two ops to remove all the cancer (70mm DCIS and 3 tumours - 4mm, 9mm, 20mm). I also only had mammogram and ultrasound and no other scans (or oncotype score). Not having any further tests has bothered me but I am trying to let it go and trust that the MDT knows what it is doing. I had a mammogram and ultrasound just 16 months before my diagnosis too so it worries me that so much cancer was either missed or grew so quickly… I think our fears are normal. My treatments finished nearly 4 months ago and as I get busier, I worry less. 
if you can, you could ask your oncologist at your appointment or else chat to your bcn. I guess they follow set procedures depending on various factors. 
Hope your appointment goes well xx

Hi Dhill,

I was diagnosed with her2neg erpostitve prpositive 41mm ICD grade 3. 

I had lumpectomy and removal of sentinels. Chemo radiotherapy now hormone suppressants and bone infusions. 

Like you I worried it had spread. I don't know nor do I remember bring told oncotype score, nor did I have any scans other than my mammogram and ultrasound. I worried for a bit I had been forgotten but I think it's dependant on your biopsy results any further tests or scans needed.

I think we all worry. Every ache or pain our first thought goes there. I think that will lessen with time. I hope it does. It is very anxiety provoking.

Hope all goes well for you xx

Thanks so much for your reply. I just feel totally out of my depth atm. My cancer was grade 3 (hit the wrong number). It’s fear of the unknown that frightens you more than anything. 

Thank you so much for your kind reply x

Thank you so much for your reply. The anxiety is almost worse than the cancer. It really helps being able to speak to people x

I totally agree - fear of the unknown and very little time to process everything. I stayed working throughout to keep my mind from wandering too much - I do feel a bit exhausted from doing that now but still know it was the right decision. I also shifted my mindset to just focus on the next step and focussed on wellbeing - upped my exercise and time outdoors. Talking through your fears either with partner and / or close friend can also really help. And don’t forget to keep doing all the things you enjoy ️ 

xx

Again, thank you so much. It really does make a difference talking g to people who know what it’s like x

Hi. I hope you are ok. I felt exactly the same, it is normal to think this but the reality is cancer can take a very long time to progress around the body and the doctors would not leave you without treatment if they thought otherwise. I had a mastectomy in November and lymph node removal in Feb and didn’t start chemo until last month so I said to the oncologist when I went for my first appointment for oncotype results that I’m so scared it’s suddenly stage 4 already given the time that has passed without being on any hormone blockers at least and she assured me that wouldn’t be the case as have various other doctors/nurses. 

I think we can become panicked by it becoming worse but we need to take a step back and think logically. 

You will be ok. I hope your appointment goes well on the 19th and please keep us updated, always here xx 

Thank you sparkles, I’m my own worst enemy. I have a sore throat atm and my mind has went straight to the very worst scenario

thank god there are people like yourself who take time out of your day to help people like me. Thank you so much x