Goodness, what a whirlwind. In the past 5 weeks I have had a routine mammogram, been called in for biopsies, told I had DCIS, had surgery, and yesterday received the crushing pathology report that I also have invasive cancer. I'm now booked for further surgery in 2 weeks, to be followed by radiotherapy, 5 years of medication, regular MRI scans...and probably other stuff that I didn't absorb because honestly I was overloaded and information was spilling over!
My head tells me how incredibly lucky I am; that the wonderful teams involved are being so supportive, that the response has been so fast, that the comparatively innocuous DCIS showed up on the mammogram leading to the timely discovery of the real devil that didn't show up. But it's still a whirlwind and it's scary.
Right now, I'm worrying about rapid withdrawal from HRT. (Both DCIS and invasive cancers are oestrogen +.) My menopause symptoms were BAD, and cutting down my patch by even a little has already led to a migraine. Add to this the future side effects of radiotherapy and the other treatments. Oh, and did I mention I'm sole carer to my parents, who live with me? Dad's 98 and Mum is 97 with dementia. I do have some emergency support available in the family, but my cancer fright has just turned from a blip in my path to a whole different, longer journey - honestly, I'm not sure how I'm going to cope.
Hello. Sorry to hear about this but please be assured you are going to cope. The worst thing to recover from would probably be chemo and it sounds like you don’t need that. I’ve also heard that ductal carcinoma in situ is the best type to have.
I would speak with your bcn about your side effects coming off the HRT as they are really good at managing these things. You will probably go on hormone blockers soon (usually before radiotherapy) so that should help massively.
Thanks for the reassurance! One step at a time, right? Nobody has mentioned hormone blockers to me yet, but perhaps they will after the next surgery. Can I ask - bcn? Breast care nurses? They have asked me to talk with my GP and I have yet to get an appointment, so I'm really lacking information on options. Most sites discuss only the common symptoms.
Hi Scoo. I would guess that the medication you mention needing for 5 years will be hormone blockers, given that your cancer is estrogen +. I've just been given a prescription for those as my ductal cancer was hormone related. I had surgery 4 weeks ago by way of a lumpectomy on the ductal cancer+ 3 lymph noses removed- and on an encapsulated lump in my other boob. I am recovering well, but go back in 2 weeks for a further surgery to take out a bit more tissue. (There were pre-cancerous cells very near the margin of tissue which was taken out, so a wee bit more tissue is to removed-to be on the safe side). Not relishing further surgery, but better now than it coming back a year or two further down the line.
The hormone blockers worry me too, as whilst I breezed through my menopause 15 years ago, I am really anxious about side effects, altho realistically in the grand scheme of things - I should be appreciative/grateful/happy that my cancer can actually be treated.
I'm surprised at the BC nurses referring you back to your GP tho, as the ones where I am being treated are brilliant and are so knowledgeable and understanding. Probably more so than a GP I wpuld have thought, as they deal with this everyday..
Hope all goes well for you xxx
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