Hi everyone,
I had my first immunotherapy + chemo session on Wednesday. Paclitaxal/carboplatin. I haven't felt too many side effects from it thankfully, just a little more tiredness than usual and a bit of a sensitive tummy, but I'm wondering how it will be going forward? I have conflicting info, my consultant said as time goes on, the side effects may become more prominent yet the oncology nurses have said how I responded to session 1 is probably how I will feel after every session? Just looking for advice really from people who have been there. Ive got to have 4 x cycles over 12 weeks of chemo, with immunotherapy every 3 weeks (pembro). I'm 45 and have grade 3 TNBC IDC with lymph node involvement but no other spread. Thanks.
Hi, I was told the side effects would worsen each time, but honestly they didn't. I kept a diary and the pattern was very similar each cycle and became quite predictable. Best wishes
Yes - I was on the 12 weeks of infusions so had chemo every week. That was draining. Then I had EC for 4 infusions, every 3 weeks. Are you having EC?
I know it probably feels forever away but keep your chin up! It’ll soon be over… I know it’s a hard slog but you’ll do it…
I am 36 and got a 13 year old and I’ve just completed radiotherapy. It’s been a slog but I can see the end…
If you do feel unwell, you can cal the number and they support. There is usually a tablet for most of the side effects. If you’ve got issues with your belly and the back end, you’ll need to monitor how many times you’re going with your back end… get to know the Bristol stool chart. My chemo nurses loved the Bristol stool chart - it was a common convo we had
If we didn’t talk about it, it was a miracle!xx
Hi MissK
I had grade 3 TNBC and had12 weeks of paclitaxel. I just felt tired on the day I had the infusion but no other side effects. This was exactly the same each week.
Yes I'll be having EC every 3 weeks after these 12. I then have to have an op and then they haven't told me the plan post-op yet. I work in a school and have been signed off for 6 months but possibly longer. I'm already struggling with doing nothing! Xx
Hi MissK
I’ve just completed 3x3 weekly sessions of EC and have found my symptoms have followed a pattern each time. I kept a diary and it’s been largely the same. The oncology nurse told me beforehand that the symptoms don’t typically accumulate except for the fatigue and it has been true for me, but we’ll see if that changes moving to Docetaxel…
Yes. I’ve been off for 12 months. I go back tomorrow for my first few hours.
I had a mastectomy with immediate reconstruction which unfortunately failed. Very rare. Had radio for 5 days to the chest wall and I start chemo tablets on Wednesday for 6 months.
Just keep your chin up… find things you enjoy doing. I was unfortunately unwell from the beginning because of pembro (it got stopped after the first infusion).
Hopefully the side effects are kind to you xx
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