NHS App Update -Awaiting Surgery before receiving biopsy results

First of all I hope you’re ok. The nhs app is good but at times like this it’s not helpful and leaves you with lots of questions. I would online the breast care unit and explained what’s happened and ask her to give you further information. You need to agree the type or surgery with your surgeon. Take care x

 Tulip22 thank you so much for taking the time to respond I will folllow up with the breast clinic .

Hi this happened to me it said awaiting surgery apt but I hadn't had my results I rang them and it turned out I hadn't received my apt letter !   Also I complained about this over the phone and all apts are listed as surgical apt because that's the name of the department they said they are trying to change it.  I literally had no sleep all weekend because of this.  Apparently they are trying to change the name of the apts.  I am not in the same area as you.   I am actually having surgery but I said its not a good way to find out.  They had to resend my apt letter as it never arrived!  It wasn't on the app either! 

 Moley01 i feel some sort of relief now and can stop worrying anout surgery that has not even been confirmed yet . Been doing well staying positive and this ruined my day today tbh . Thanks for sharing and its good to know that itbdoesnt necessarily mean surgery . 

That's ok I am only 2 weeks into this so it's been a bit of a time for me.  I think the NHS app is not necessarily correct.   

Hi, how did you get on?

Thanks for asking Coco1207  Hope you are well as can be . I found out that I have two tumors: a 3 cm borderline phyllodes tumor and a 1.7 cm tumor that wasn't biopsied but showed up on the ultrasound. With surgery scheduled for the end of May, I was referred back for a biopsy.

On May 2, I went in for the biopsy of the 1.7 cm tumor, and to my surprise, they discovered two more lumps under 1 cm—one at the 11 o'clock position and the other at the 12 o'clock position. I'm now anxiously waiting for the results of these biopsies, which should come in on May 16.

Given that these tumors are recurring, I'm seriously considering a mastectomy. This would be my eighth surgery, as I've been dealing with these issues for the last ten years.

Hi I had a similar situation I originally just started from the normal screening.  I had biopsies etc then also it said surgery apt so I was stressed and rang up turned out all apts were listed as surgery which wasn't helpful. 

Anyway I did need surgery so I went from first apt in Feb for biopsies, ultrasound etc found out I had DCIS but it wasn't cancer.  Had surgery end of March.   They took more biopsies.

Now find out I do have cancer and having also to see if it has spread having  second operation this week so it's been a  rollercoaster !

On the positive side I had no symptoms what so ever and no lumps despite having a tumour.  So I am counting my blessings but nurse did say may need a mastectomy so it's been really difficult as they won't usually attempt this  a third time !.

 Moley01 thanks for sharing and nit so great that it turned out you had cancer . It must be a roller coaster for you , the waiting for me has caused so much anxiety . I guess I am grateful for the care and waiting now for surgery on 12 June and the outcome of that biopsy . Hope all goes well  for you . 

Thanks I find the waiting the hardest part but I am just taking each day at a time it's weird because other than recovery for my past operation I don't feel I have anything wrong with me.  I think that's the weirdest part been told I don't look like I have cancer although not sure what your "supposed to look like".  It has all been dealt with very quickly so I think we just need to try not over think everything which I know isn't easy at all.  I hope things work out for you as well I do tell myself it could be worse I could be walking around not knowing I have anything wrong.   I am trying to use these forums to try and get the support or the breast nurses at the hospital are good to talk to.   Just trying to keep my anxiety levels down I am at home at the moment off work.   I am going out for walks every day.  Hope the wait isn't too long for you.  Take care