Where do I go for help? UPDATE

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Update

Thank you for all your kind replies. I don’t feel so alone now.

My symptoms were to do with my remaining breast and it feels lumpy too. I could be wrong about the lumps being new because I have ignored this breast since the mastectomy.

I am coping by being proactive. The main reason why I was posted was because I was told that the Breast Care Nurse is attached to my Consultant and as my Consultant is on long term sick leave, I don’t have a Breast Care Nurse. This is not true as she should be with me for 5 years. She is the gatekeeper to my care team, so she does not have the option to dump me.

I have contacted the Consultants secretary and had a mammogram a couple of days ago on the remaining breast and have an appointment this month for a follow up with another consultant. I will have my questions prepared for then.

Thanks again

Determined to be Positive x

Hello,

I have a number of different symptoms that scare me.

I finished Radiation Therapy in July and got transferred back to my original Consultant. I didn’t have Chemo as I’m on The Optima Trial.

Following in July, didn’t see my Consultant and when we asked where we were up to were told I’m cancer free. I was devastated that nobody had mentioned this.

I am now in significant pain and I don’t know where to get help.

How long should my MacMillan Breast Care Nuse be with me? My Consultants secretary said she’s not with me now, but I thought she was with me 5 years??

Frankly I have given up asking for help.

My Consultant is on long term sick leave, my breast care MacMillan nurse is ignoring me, BMO didn’t contact me after my treatment and haven’t rang me back. I asked for a call back from a MacMillan and they didn’t. I did get a reply to my email but they just said I should contact my care team. My Dr just tells me to go back to the Cancer support team, 111 didn’t answer, I stopped contacting my family and friends as they just stopped contemplating after I got cancer. My husband can’t cope with me showing any pain or distress and just puts his head in his hands, so I don’t tell him.

I am really struggling.

DelilahLonglegs 4 months ago in reply to Irishgirl16

Thank you so much.

i had a mammogram a couple of days ago and a follow up this month x

DelilahLonglegs 4 months ago in reply to Atlantic O

Thank you so much.

i have contacted the trial nurse. I never thought of that.

thanks again x

DelilahLonglegs 4 months ago in reply to SEE

Hello,

Ignore my reply if you don’t have time to read a novel.

my BCN ignored me face to face and does not return my calls.

The last 3 years for me have had so many tragedies. If I listed them all, you would not believe me. I wouldn’t believe it if someone told me.

Briefly:

Dec 22 Burst Appendix then Sepsis.

No contact from my family and they did know.

Jan 23 I had never felt so ill in my life. It felt like I wasn’t getting supported, so for once in my life I reached out to friends and family asking for help. I didn’t get it and said so.

They said this was unusual behaviour and tried to get me sectioned.

I didn’t have mental health issues but the suspicion is still hanging over me and it offends me.

My husband was told that if he loved me, he would get me help. Nobody asked what they could do to help or did I need a hug.

March 23

After repeatedly stating that I don’t feel well and struggling to eat, I collapsed with a strangulated small bowl (scar tissue).

Laparotomy and 22 staples & 35 stitches later went home and my daughter (A&E Nurse) wanted a fist fight as I wouldn’t let her move back home.

I had drawn a line under the trying to get me sectioned and contacted each member of my family after the stomach surgery, but they never contacted me.

September 23

Got breast cancer. No contact from my family and my daughter’s response was “oh god that’s hereditary isn’t it?”.

I then blocked all of my family so that I am not waiting for them to show they care.

My husband loves me and he is the love of my life. Because he loves me, he cannot give me emotional support as he falls apart. It hurts me to see him fall apart, so I keep everything to myself. This is the only way I can stay with him.

I now have nobody as my friends stopped calling one by one.

I am blocking out the heartbreak until I’m back on my feet, then I will address the family issues and find new friends (maybe even a new husband).

thanks again for your reply x

Irishgirl16 4 months ago

Hi, I'm pleased to hear you got an appointment and things are moving forward. Best of luck

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Where do I go for help? UPDATE