Hi I’m new to the gang was just reaching out to see if anyone has a similar diagnosis to me as I’m currently waiting for my treatment plan and my mind is going crazy.
Grade 2 ductal carisoma (I think it’s spelt)
62mm
Er8 Pr7
her2 negative.
Diagnosed on 2.10.24
any advice would be appreciated xx
I’m glad you got your treatment plan must be a relieve I’m hoping to get mine tomoz I have appt at 10am. What treatment have they offered you first? Have your biopsy results been sent to America? Sorry for all the questions I hope telling your children went as well as it could have. I dreaded telling mine but they have been really strong about it all so far x
So I am having 8 rounds of chemo (4 of one type and then 4 of another), every 2 weeks, 6 week break followed by surgery and then radiotherapy and hormone tablets. Originally it was going to be surgery first but because of the lymph node involvement they want to start with chemo to deal with any rogue cells that are circulating. No, my biopsy results weren’t sent to America, America was mentioned by my BCN but regarding the tumour after surgery but when I mentioned this to consultant he said no it would be. I think it was to determine whether I needed chemo but as I am having it first I think that is now irrelevant. We are going to tell them at the weekend so they have some time to digest it. My first chemo likely on 10-14 days x
That must be a relief that you are started so soon! Please keep me updated with your progress I wish you all the luck in the world. And good luck with telling the kids it will be one of the worst things you ever have to do but once they know you can all move forward with positive vibes xx
Hi, 3 years ahead of you but similar diagnosis but my cancer was 13cm and 7/14 nodes positive. I remember being where you are now and it is the most anxious part. Once they decide your plan and treatment gets started it will get better. I had surgery, chemo and radiotherapy now Letrozole for 10 years and just completed 2 years of Abemaciclib. Chemo was by far the worst part but doable. So far so good for me now and just been discharged from Oncology few weeks ago. Good luck with your treatment xx
Thank you, I am so glad that you are doing well x hearing of positive outcomes is so encouraging and gives me a boost.
Bone scan Monday which will hopefully be clear and then start treatment. I was originally surgery first but then they have changed the plan to chemo first. The size of mine has bothered me so much, no one can give an exact size but I know it’s at least 6cm with 1 lymph node definitely positive and 2 more suspicious. we told our children this morning which was hard but now them seem back to normal! Kids are strange but glad they have accepted it pretty well. I am sure they will have their moments x
My boys are teenagers and I found it very hard to tell them but kids are so resilient and just get on with things. I had bone scan and CT scan. I hated all the investigations at the time, was petrified what they may find but thankfully, as big as my cancer was, the scans didn't show any abnormalities.
I’m glad you have told the children like you say it’s upsetting and first but they soon bounce back. Let me know how chemo goes! I’m awaiting the onco test results now from America to find out whether it’s chemo first or surgery first for me. I’ve started on tamoxifen for now so at least I’m getting something inside me while I’m waiting a few more weeks! Sending you hugs xx
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