Hello, newbie here : )

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Hello everyone,

I thought it wise to join a support group facing the challenge of breast cancer. I was diagnosed a month ago today with IDC 2B G2 boob cancer in one boob. Got a mini donut in there apparently. Now poised to meet the oncology team to set up a chemo ride before the op. I was surprised at the time scale that my consultant described today. 3 rounds or more going to take a while.

I'm quite well in myself and apprehensive about becoming sick. I work with kids, who we know as mighty infection sharers, so no going to work for me for some time I guess. This is a tough pill to swallow.                                                                           

I'm a youngish grandma, recently celebrating the arrival of my latest grandchild last week. I like arts and crafts as hobbies and have knitted an impressive amount of baby clothes recently : )                                                                                                                                                                                                                       

I'm looking forward to 'meeting' you and giving and getting 'leg-ups' on this journey to recovery.

  • Hi Bluebell725, sorry to hear of your recent diagnosis of IDC. I was diagnosed with IDC in January, not sure what the 2B and 2G are that you mention. I had 2 tumours and 1 affected lymph node, also cells in breast tissue. I had 7 cycles of chemotherapy, which was very successful. I was also put on phesgo injections, as I am HER2 positive. I have zoledronic acid infusions every 6 months, for 3 years, to strengthen bones I believe. I have recently had a mastectomy with diep flap reconstruction and will have a further surgery to reduce healthy breast. Last week I had post op assessment and received great news. Out of 20 lymph nodes removed, none showed any cancer. There was no sign of the tumours, just some scar tissue. There was also no sign of any cancer in the breast tissue. Next step will be a course of radiotherapy. Just to reassure you a bit, I got through chemo, with minimal side effects, although did lose my hair fairly quickly. After diagnosis hubby and I started walking 2 1/2 miles daily, which was great for the mindset. I continued this throughout chemotherapy, which I feel really helped. They give you anti sickness meds to take, I wasn't sick or even felt sick once. I too have grandchildren of 7 and 5 who I adore. I found doing puzzles was a great distraction for me, wish I could knit. Always here if you have any questions and I wish you well on your journey moving forward. Xx

  • Hello Daisy24, thanks for your reply : ) Sounds like you've been through the mill and come out triumphant so far.

    I'm glad to hear that you didn't feel nauseous with the chemo, I'm really hoping I won't get all that sickness either. 

    I'm dreading this 1st oncology appointment as it makes this all so real. Maybe it's because I am now single unexpectedly and don't have a caring partner to lean on. Fortunately, my friend is coming with me this time as I'm sure I'll forget half the info they'll be telling me. 

    I have signed up for the O Wise app and finding it quite useful. 

    I hope your radiation therapy isn't too painful and that every single horrid cancer cell has been sent packing xx

  • Hi Bluebell725, sorry to hear you have found yourself unexpectedly single, especially at this difficult time. Pleased you have a friend to go with you to your oncology appointment, it's good to have support and someone else to listen to all the information being given. I haven't heard of the O Wise app, but it's great that you find it useful. I'm on the Cancer Research forum, along with this one. It is so helpful to share experiences with one another. Always here if you need a chat. Xx